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Severe pelvic pain 10+years after total hysterectomy
When I was 26 I had to have a total hysterectomy I had 3 separate surgeries because my doctor wanted to just take my uterus so he did but during 2wks my recovery I developed I massive cysts on my right ovary so he had to go back in and remove the ovary and tube. Then 3 weeks later I developed a even bigger cyst on my left ovary so he went back in and removed it with the tube. Also removed my cervix. So I dont know why I still have this unbearable pelvic pain. It drops me to my knees and instant tears. I lay in bed for days with it in the fetal position I see a pain specialist but he dont know why I have the pain. I've been to different obgyn docs and they dont know the cause some think it could be endometriosis again but does it come back after a total hysterectomy? I have had 3 children naturally. And I would have 100 more kids rather than go thru this pain. It feels like contractions at times. And intercourse with my husband has made it so difficult. Any advice would be so appreciated. Please help! Lol
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So sorry to hear about both of your troubles @kelbel73 and @pinkbubblez ! Did you get any help pinkbubblez? kelbel73, I also have severe pain after standing for some time! And rectum pain so I cannot sit. I also felt/feel like I’m going crazy. I had endo removed in 2016 and then total hysto w overuse and fallopian tubes removed in 2017. I felt pretty fine until last year. And oddly (though I am consistently told by gynos it’s impossible) the pain gets worse cyclically same time every month (we just discovered this about 3 months ago. Still trying to get help, but losing hope. Sad face.
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2 ReactionsI'm sorry to hear but you're going through our bodies are something else it just seems like one thing after the other but whatever you do stay strong don't give up you are your own advocate no one else can do this for you but you. Everything is different now since covid hit you can go to the ER in severe pain and they won't do anything but give you Tylenol it's sad but true. God bless you and if you are a believer in Christ and put your faith and trust in him he'll never leave you nor forsake you.
I had to have a total hysterectomy for endometriosis also, but mine was in two stages (first the left ovary for a large cyst, then 8 mths later the rest of it) . ihave gone through 4 ob/gyns. for post op pain. i waited a year, because healing takes about a year to complete. one ob/gyn said that the nerves were severed and would take awhile to heal. (true). but did nothing to help the pain. Another ob/gyn gave me hormones which made things worse. i researched and found out that endometriosis feeds off of hormones, especially estrogen. So i put myself on a low estrogen diet, making sure my food did not have added hormones, and some, especially flaxseed, wheat/gluten, soy are high in natural estrogen that our bodies can use. my GP told me to cook all my fruits and veggies, as all plants will have some natural estrogen. my third ob/gyn also put me on a low fiber diet (so as not to overstretch my intestines, which the endo. had landed on. I really liked my third ob.gyn but she moved and lost her. my 4th ob/gyn then put me on an anti-inflammatory diet that included omega 3. i take supplements because i hate fish. that anti-inflammatory diet has really helped. after a few years i decided to go off it, and was good for awhile, until recently, when i had a flair. so i will go back on the anti-inflammatory diet.
By the way, i have read that many people with endo. have celiac disease or at least wheat sensitive. That seems to be true because the 3 people i know with endo. are also celiacs, and i am possibly celiac. i got tested after going gluten free (should be before), but even then i tested positive in several but not all the areas.
After 3 surgeries, your nerves are probably severed, and irritated by the endo. too. now your nerves are trained to hurt. anti-inflammatory may help
Why aren’t you sitting in the drs office? You must check this out! Please!
Prayers sent.