Neuropathy Medications

Posted by sunnyflower @sunnyflower, Aug 28, 2020

Hello, read this artical from the FDA dated January 30th, 2020, about dangers of Gabapentin, Lyrica and other drugs. I thought it worthy of our attention : https://www.fda.gov/drugs/drug-safety-and-availability/fda-warns-about-serious-breathing-problems-seizure-and-nerve-pain-medicines-gabapentin-neurontin
Warmest regards, Sunnyflower 🙏

Interested in more discussions like this? Go to the Neuropathy Support Group.

Thank you, Hank. There are only 1000 year-around residents in BB now but I'm sure it was much much better in the 50's and 60's. Peggy

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@user_che214927

Congratulations. I totally agree with your thinking, and wish you a great out outcome. Just an interesting point on improving the walk motion. I can walk around the house, but, as my left foot is most affected, but improving.However I then considered if I continued to walk in an un natural gait , the brain would read that into my body map. I decided to walk with two stick, with clamps on forearm. This allows me to walk slowly with full use heel to toes action.As a result the contact and use of left foot is improving quickly. I am now walking outdoors with the sticks, with a good motion. I walked 300 yards yesterday, and will increase distance slowly . Best wishes, and go for it!

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@user_che214927 Hi Barry, glad to hear you are doing well! Thank you. It does take a lot of discipline and patience before seeing results. I started my exercises a month earlier from you. I figure after a year of neuroplasticity, if I still need alignment, I will do the strabismus surgery. I had read of an elderly man in his 80s. He had done neuroplasticity with eye exercises. It took him a year to achieve eye alignment with neuroplasticity. Goes to show one is never too old. Hang in there! It might take longer with age but with determination and will by your side, your goals are achievable. Good thinking to use the sticks in making your gait more normal. You have come a long way. Now you are ambulatory outdoors! Did you start out with balance issues? Keep up the good work! I strongly believe the brain is powerful and believing in it will help you to make your goals become reality. Your goals are within reason. Soon you will be enjoying summer activities. Do you watch any sports like the Melbourne Cup? I can’t think of much I did during your summer. Earlier in the year, fall/winter I enjoyed the Australian rules football. Best of luck to you! I expect good things to follow especially by your 90th birthday in January! G’ day and best wishes to you, 🤓Toni

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@avmcbellar

@user_che214927 Hi Barry, glad to hear you are doing well! Thank you. It does take a lot of discipline and patience before seeing results. I started my exercises a month earlier from you. I figure after a year of neuroplasticity, if I still need alignment, I will do the strabismus surgery. I had read of an elderly man in his 80s. He had done neuroplasticity with eye exercises. It took him a year to achieve eye alignment with neuroplasticity. Goes to show one is never too old. Hang in there! It might take longer with age but with determination and will by your side, your goals are achievable. Good thinking to use the sticks in making your gait more normal. You have come a long way. Now you are ambulatory outdoors! Did you start out with balance issues? Keep up the good work! I strongly believe the brain is powerful and believing in it will help you to make your goals become reality. Your goals are within reason. Soon you will be enjoying summer activities. Do you watch any sports like the Melbourne Cup? I can’t think of much I did during your summer. Earlier in the year, fall/winter I enjoyed the Australian rules football. Best of luck to you! I expect good things to follow especially by your 90th birthday in January! G’ day and best wishes to you, 🤓Toni

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@avmcbeller What is neuroplasticity? I have neuropathy is this somekind of exercises for it?

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@lioness

@avmcbeller What is neuroplasticity? I have neuropathy is this somekind of exercises for it?

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@lioness - Here's the discussion started by Barry @user_che214927 that tells you all about neuroplasticity - Neuropathy and Brain Neuroplasticity: https://connect.mayoclinic.org/discussion/barry-sheales-australia/

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@johnbishop

@lioness - Here's the discussion started by Barry @user_che214927 that tells you all about neuroplasticity - Neuropathy and Brain Neuroplasticity: https://connect.mayoclinic.org/discussion/barry-sheales-australia/

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Thanks Jim! I found information online about it with actual cases

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@sunnyflower

Sry for misspelling article. It's the Gabapentin that makes me forget to edit. 😉

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Thanks for the article. It was very helpful. I understand about the memory loss. I forget if I took my pill. lol

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Hello @silverapple, Thank you for the private message. I am so sorry you to hear you are in pain and I know you are not alone with your struggles. I thought I would answer it in this discussion on Neuropathy Medications so that other members who may have the same question or may have some experience to share with you can also respond.

You asked how a person can buy Lyrica in the USA. I'm no expert but I am pretty sure the only legal way to buy Lyrica is to have your doctor write a prescription and send it to the pharmacy of your choice. Here is some information cautioning online pharmacy purchases.

Digital danger: a review of the global public health, patient safety and cybersecurity threats posed by illicit online pharmacies:
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5127424/
How to Buy Medicines Safely From an Online Pharmacy
-- https://www.fda.gov/consumers/consumer-updates/how-buy-medicines-safely-online-pharmacy

Are you able to talk to your doctor about getting a medication that helps?

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@avmcbellar

@user_che214927 Hi Barry, glad to hear you are doing well! Thank you. It does take a lot of discipline and patience before seeing results. I started my exercises a month earlier from you. I figure after a year of neuroplasticity, if I still need alignment, I will do the strabismus surgery. I had read of an elderly man in his 80s. He had done neuroplasticity with eye exercises. It took him a year to achieve eye alignment with neuroplasticity. Goes to show one is never too old. Hang in there! It might take longer with age but with determination and will by your side, your goals are achievable. Good thinking to use the sticks in making your gait more normal. You have come a long way. Now you are ambulatory outdoors! Did you start out with balance issues? Keep up the good work! I strongly believe the brain is powerful and believing in it will help you to make your goals become reality. Your goals are within reason. Soon you will be enjoying summer activities. Do you watch any sports like the Melbourne Cup? I can’t think of much I did during your summer. Earlier in the year, fall/winter I enjoyed the Australian rules football. Best of luck to you! I expect good things to follow especially by your 90th birthday in January! G’ day and best wishes to you, 🤓Toni

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Hello @avmcbellar Could you share with me a good source for finding Neuroplastic exercises?

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History -60 year old male 2 major back surgeries age 26 and 28. L4-L5, L5-S1. Ruptured discs bending over. First laminectomy, second intended hardware change during surgery facet joints not removed weight gain a factor. Fusion done without bone removed from pelvis. Chronic pain ensued after first surgery. Workers comp refused to pay and waited one year one darvon , prednisone and anti inflammatory. Only drug still available is prednisone. Multiple failed procedures and treatments. Eight trips thru physical therapy. Always resulted in more pain. Ten years later Nueropathy from spine. Has gradually increased in pain with constant pain directly on spin interminet pain in both legs . Fity Nine yrs old one year ago rupture of L1-L2, L2-L3 .Had lost weight by this time from bariatric surgery. Lost ability to walk without assitance and a rolling cart. Cage Surgery successful. Pain persistant. Nueropthy reaching unberable levels. Cymbalta 60mg max dose Gapation 800mg x3 per day. Laying down flat inceases nueropathy pain, numbness, and tingling. Require trazadone 150mg/day at bedtime. Provides 4-6 hrs sleeps. Naps without medicene are not possible . Methadone 20 mg x 3 for pain. Somewhat effective, been using for at least 17 years. Daily pain levels from 8 to 10.
Moved to WV. New doc wants to reduce methadone to 40 daily and restart procedures. Been there done that. Will consider disectomy if correct area is located. All the mental issues that go along with long term chronic pain. Titrated off 2mg x 3 of clonazepam after 17 years of use. Currently titrating off Lamictal 2x 150mg daily after 17 yrs. Both my idea, Have never been addicted to any of numerous narcotics. Drug urine, blood tests always clean. Desparately seeking any relief. No real life. Forced from hospital computer technical management position 17 yrs ago. Very lonely. Thanks Please excuse errors.

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@tlock47

History -60 year old male 2 major back surgeries age 26 and 28. L4-L5, L5-S1. Ruptured discs bending over. First laminectomy, second intended hardware change during surgery facet joints not removed weight gain a factor. Fusion done without bone removed from pelvis. Chronic pain ensued after first surgery. Workers comp refused to pay and waited one year one darvon , prednisone and anti inflammatory. Only drug still available is prednisone. Multiple failed procedures and treatments. Eight trips thru physical therapy. Always resulted in more pain. Ten years later Nueropathy from spine. Has gradually increased in pain with constant pain directly on spin interminet pain in both legs . Fity Nine yrs old one year ago rupture of L1-L2, L2-L3 .Had lost weight by this time from bariatric surgery. Lost ability to walk without assitance and a rolling cart. Cage Surgery successful. Pain persistant. Nueropthy reaching unberable levels. Cymbalta 60mg max dose Gapation 800mg x3 per day. Laying down flat inceases nueropathy pain, numbness, and tingling. Require trazadone 150mg/day at bedtime. Provides 4-6 hrs sleeps. Naps without medicene are not possible . Methadone 20 mg x 3 for pain. Somewhat effective, been using for at least 17 years. Daily pain levels from 8 to 10.
Moved to WV. New doc wants to reduce methadone to 40 daily and restart procedures. Been there done that. Will consider disectomy if correct area is located. All the mental issues that go along with long term chronic pain. Titrated off 2mg x 3 of clonazepam after 17 years of use. Currently titrating off Lamictal 2x 150mg daily after 17 yrs. Both my idea, Have never been addicted to any of numerous narcotics. Drug urine, blood tests always clean. Desparately seeking any relief. No real life. Forced from hospital computer technical management position 17 yrs ago. Very lonely. Thanks Please excuse errors.

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Welcome @tlock47, I'm sorry to hear you haven't been able to find much relief for your neuropathy pain from the back surgeries. I know this must be really difficult to deal with on a daily basis. I'm wondering if you might find the following discussion started by @jenniferhunter helpful:
--- Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Have you heard of Myofascial Therapy?

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