← Return to Frustrated undiagnosed

Discussion

Frustrated undiagnosed

Brain & Nervous System | Last Active: Nov 1, 2023 | Replies (7)

Comment receiving replies
@car0717

Hello, my father just turned 70 July 26. We have seen 3 neurologist all if which can't diagnose because he truly doesn't fit any one near disease. He just had a scope of the esophagus with no findings. Vocal cords more and close was reviewed by scope. What type of autoimmune did you have?

Jump to this post


Replies to "Hello, my father just turned 70 July 26. We have seen 3 neurologist all if which..."

@car0717 Thank you asking about me. I have an unusual autoimmune disease that affected my brain. Called Clippers—chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids. After about 6 years, I’m doing OK.
Have you thought about asking your question about your Dad in the Caregivers Support Group?
https://connect.mayoclinic.org/group/caregivers/
Many of the members are dealing with similar issues.
Think you might try it?