Again, I have been diagnosed with pulmonary embolisms. Beginning of the month of September, I flew home from NC with extreme heaviness in my body. I was unaware of my condition while I was in NC. It was said that at night I would get out of bed and lay and stretch out on the floor of our hotel room grunting, moving around on the floor while asleep . Asleep answering how unwell I felt. I continuously did this for 1 week. When I flew home, the heaviness I felt became extreme and I took myself to the hospital. I was diagnosed with 2 pulmonary embolisms in my upper right and left lung. Inpatient for 3 weeks on a blood thinner that I had been on since my 30’s. After being released, for not even 3 hrs, I brought myself back to the ER complaining about my hip. Sent home with muscle relaxers. 3 days later I presented myself to the ER, at another hospital, and was diagnosed with 2 more embolisms in the lower quadrant of my left and right lung and a DVT in my left leg. Still in the anticoagulant that I have been taking for @ 30 yrs.
Here now, today, I am sitting in an ER. My chief complaint is extreme chest pain. More acute with exertion. To include just walking, breathing, and moving my body. Sleeping has been out of the question. When I lay down I feel like I am suffocating. I am out of hospitals to run to because now I am being told that they do not know how to help me. To be honest, I don’t know how to help me. I know it takes years for our bodies to heal from blood clots. I understand that it’s not the anticoagulants that breaks down the clots, it’s our body. So, knowing this isn’t helping how I am feeling physically. I need to know what I can do for myself to have a quality of life that I can enjoy with a reasonable amount of discomfort and pain and minimal ER visits. I need to know how to mentally adjust with constant flare ups of clotting and its residual side effects.