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Myxofibrosarcoma: What treatments did you have?

Sarcoma | Last Active: Oct 7 12:35pm | Replies (104)
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@enver

I am diagnosed with myxofibrosarcoma. Its at the back of the left shoulder. Doctor will tell me their plan to go forward.
I would like to know if someone has been treated for it and myxofibrosarcoma came reoccured. If true than how long was it from the time it was treated that it came back.
Thank you for any information you can provide...

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Replies to "I am diagnosed with myxofibrosarcoma. Its at the back of the left shoulder. Doctor will tell..."
Teresa, Volunteer Mentor | @hopeful33250 | Nov 1, 2023

Hello @enver and welcome to the Mayo Connect Cancer support group. I can understand your concern and I'm glad that you found this forum. We have members like, @chuck138 @michellebanta and @4me who have this diagnosis as well. I hope that they will share their experiences with you.

I can understand you wanting to know about recurrence. Please know, however, that it depends a lot on the staging of the tumor. Have you had surgery or a biopsy yet? Do you know what stage this is?

I look forward to hearing from you again.

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chuck138 | @chuck138 | Nov 1, 2023

I am currently in treatment and being routinely monitored for recurrence. I think everyone is different, so it's hard to provide the info. Be prepared for a surgery, and most likely radiation. I think that's par for the course with sarcoma. The rest, your Doc will talk with you about when they know more about what you specifically have.

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