Me too

@sandytoes14 and @contentandwell - The @mention feature is working for me. Please private message me if you are still having issues with it.

Jen, I agree. I get so many emails I am starting to delete some without reading them because I get overwhelmed with the chatter. I am consumed with pain and I had delirium my last surgery and I want the medical profession to get more knowledgeable about it. I think that if you want to just chat, that is fine, start another site. I am scared crap about my life not where I live. Please MODERATORS do something. Marield65

Hi @jenapower,
This is Colleen, the Community Director. Thank you for your private messages to me. I responded to both of them and am kindly waiting for your reply. If you didn't receive my private responses, please feel free to contact me using this form https://connect.mayoclinic.org/contact-a-community-moderator/

I didn't get them. I basically asked you what I already wrote here. Is it possible to answer whether we can have another form or not for chatting, here. I am not one of the people that particularly wants to chat about my personal life. I want to talk about medical issues whether I have a question or I can add something for another person. I'm just trying to make a suggestion for a way to limit the amount to email coming through in the chronic pain form. Idea why I did not get your email, but I didn't. Thank you Jennifer

Coleen, that link is to the form I filled out already twice. Do you want me to email you again?

@hazelblumberg

Hazel,

It's been a while since I looked into the process of getting MM, but as well as I can remember, the cost here in Oregon is similar to Florida. Around $250 for an annual appointment with the prescriber, $200 for the annual fee for the state, and then the high cost of the weed, which has a huge state tax. I decided I couldn't afford it.

Jim

Today was a difficult one for me. I had an appointment with a hematologist because my pcp doesn't know what's caused my iron and hemoglobin levels drop. The appointment wasn't until 4, and we had spent the day shopping, and my feet were burning, and the arthritis in my hands is hurting. I'm so tired of pain, both physical and mental pain. Then, hearing that what might be wrong could put me through what my sister did, and slowly killed her, but I have to wait for test results from 4 different doctors, deepens my anxiety and depression and suicidal thoughts. I just want to be done with it all, but it never ends. It's one thing after another. 3 days to go before I see the therapist again. Sometimes, a week is more like 15 days long.

Jim

Hi Jim, sometimes these messages seem all jumbled up by date, I'm not sure why. I guess it's because we respond to a specific answer, or question.

I understand the depression that constant pain causes. You feel isolated, like you can't participate in your own life. Probably a dumb question, but are you want any kind of antidepressant? Even for a short period of time until they figure it all out, might be helpful. Also can you not move up your appointment with your therapist if your having a crisis moment?

You're in the right place. At least there's people here that understand and probably whether they admit it or not of felt exactly the same way. I know when I'm in really bad pain, I get very down. Fortunately the pain fluctuates and I have a little breather and I feel like myself again. Also having my kids come visit makes a huge difference, they just brighten my world. I'm lucky that one lives close, and the other and his wife will face time me. They kinda are my lifeline, as well as my husband and a few friends that come visit, call or text. Do you have people that will connect with you and real life? Really helps a lot. You have to find ways to distract yourself otherwise you're kind of a crazy in the situations. My thoughts and prayers go out to you. Jennifer

@jenapower

Thanks, Jennifer, for your words. I've been taking antidepressants for 15 years. I have major depression disorder and anxiety disorder, along with PTSD, suicidal thoughts, peripheral neuropathy and a variety of other afflictions. I know that there are many people in far worse condition than I am. When I don't feel well, depression is surely worse. I don't know if I can talk to the therapist between appointments. I don't think Medicare would cover it.

Jim