Gabapentin side effects?

Posted by Sundance(RB) @sundance6, Apr 13, 2019

I am a regular on the Mayo Board! I don't know what I would do without it! Our doctors don't want to discuss openly the things about illnesses and side effets of drugs and other things. Anyway, my question to all of you is Gabapentin and it's side effects. I have been on it now for 6 months. My doctor raised me from 100mg. to now I am on 400mg. three times a day.
The problem is my tiredness! I happen to be in a friends office yesterday and she was taking some medicine. She said she was taking Gabapentin. I asked why and she said she had, had shingles back when and it still helped with the pain. I know the drug is percribed for many things that is why I take it for my issues.
I told her I had been taking it for about 6 months. She asked if I had been tired all the time, just out of the Blue. OF COURSE I SAID YES! She said it took her a year before she got out of the tiredness.
Let me know if any of you have experienced the same thing. Also let me know at what dosage you may be on? I know this is all confidential!
Again Thanks to The Mayo Clinic and Everyone who is kind enough to be open with their lives!
Sundance!

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@ripley

Are you taking it for fibro pain? If so, does it help? I've read one problem with gabapentin is that you build up a tolerance and have to keep increasing the dose. So, this was not the case with you?

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I have neuropathy in my hands and primarily in my feet. I am not dietetic, I’ve taking the same dosage since day one, 20 years ago. I very rarely get burning or discomfort in my feet. Taking it the evening I think helps.

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@popolopo

Try CBD with a little bit of TCB. You can get it in capsules or oil. I prefer it to opioid or Advil or Acetaminophen. It is not cheap because insurance won’t cover it. It works !

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What is TCB? I tried google and nothing medical or chemical came up
Thanks

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@olskool32

I have neuropathy in my hands and primarily in my feet. I am not dietetic, I’ve taking the same dosage since day one, 20 years ago. I very rarely get burning or discomfort in my feet. Taking it the evening I think helps.

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Has your neuropathy stayed the same over 20 years. I have had it 13 years and just in the last year it has gotten worse. Has your balance been affected. I am hoping to keep going a few more years. I am 78

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@artscaping

Good evening @rleloup234 .....great to meet you and read about your efforts to reduce your dependency on Gabapentin. I am also close to the end of this long process...from 2400 mg to 200 mg. What a journey.

May I ask you this......is your medical provider aware of your program and supportive? It is important to inform all of your medical even dental team.

Have you found something to take the place of Gabapentin? I have replaced mine with medical cannabis. It has taken a few years to work this all out and I am closer every year. What I didn't really consider was the pain issue. I have had to replace it with cannabis tinctures in the 2:1 CBD/THC and 1:1 CBD/THC ranges.

May you be free of suffering and the causes of suffering.
Chris

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Can you please answer some questions about the cannabis? How often do you take this throughout the day? How much CBD/THC do you take for effective pain relief? I'm taking one 20mg CBD capsules a day and it's not helping. I take sleep gummies most nights, which help a little bit but wear off about 4-5AM and then I have trouble going back to sleep. Thanks.

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@davidgkoester

What is TCB? I tried google and nothing medical or chemical came up
Thanks

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Sorry,try THC

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@ripley

Can you please answer some questions about the cannabis? How often do you take this throughout the day? How much CBD/THC do you take for effective pain relief? I'm taking one 20mg CBD capsules a day and it's not helping. I take sleep gummies most nights, which help a little bit but wear off about 4-5AM and then I have trouble going back to sleep. Thanks.

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As a transplant patient on immune-suppressants, I cannot take cannabis as THC interferes with the metabolization of tacrolimus. And that is something with which you do not want to mess around.

Best always,
s!

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@ripley

Can you please answer some questions about the cannabis? How often do you take this throughout the day? How much CBD/THC do you take for effective pain relief? I'm taking one 20mg CBD capsules a day and it's not helping. I take sleep gummies most nights, which help a little bit but wear off about 4-5AM and then I have trouble going back to sleep. Thanks.

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Good afternoon @ripley, thank you for responding and seeking more information. First things first. Have you ever become acquainted with medical cannabis as opposed to recreational marijuana? I was fortunate to meet the owner of my dispensary. He was about my age and had similar medical challenges. He took the time to help me learn about options, strains and frequency. Do you have dispensaries in your state?

In the last 10 years, I have experienced, learned, and shared my medical cannabis experience with my clinicians and MFR therapists. It feels like we are on the same team. I am happy to share what I am doing right now. You may want to use the search bar at the top of the screen to find more of the history.

I also want to introduce you to @jenatsky who is one of my "consultants" on Connect. He even helps me make sure that I am on the right page or at least headed in the right direction.

First.....I limit my choices to only tinctures and topicals. Tablets and capsules don't give you the opportunity to get a good start by using the membrane under your tongue to send active elements directly to your brain. By swallowing dosages, they have to go through your digestive system and take a lot longer to be helpful.

I also advocate and seek the entourage effect with the use of THC which by the way does reduce pain.

In the morning, I use 50ML of a 1:1 CBD/THC tincture. I call it my "get up and go" routine. In the afternoon, depending on my pain and discomfort or activities like MFR, I may repeat that dosage.

In the evening, I use 75ML of 2:1 CBD/THC as I seek a calming down and ready-to-sleep status. That's it.....and that is all I need. I have been sleeping well for quite a few years now.

Please ask any questions that come to mind. I am here for you.
May you be free of suffering and the causes of suffering.

Chris

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Chris--I really appreciate your specific guidance on THC and have asked you advice before. Today's question: I'm wanting to translate your 1:1 ratio of CBD and THC from ML to MG. Can you tell me what that might be? Thanks. Rebecca

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@artscaping

Good afternoon @ripley, thank you for responding and seeking more information. First things first. Have you ever become acquainted with medical cannabis as opposed to recreational marijuana? I was fortunate to meet the owner of my dispensary. He was about my age and had similar medical challenges. He took the time to help me learn about options, strains and frequency. Do you have dispensaries in your state?

In the last 10 years, I have experienced, learned, and shared my medical cannabis experience with my clinicians and MFR therapists. It feels like we are on the same team. I am happy to share what I am doing right now. You may want to use the search bar at the top of the screen to find more of the history.

I also want to introduce you to @jenatsky who is one of my "consultants" on Connect. He even helps me make sure that I am on the right page or at least headed in the right direction.

First.....I limit my choices to only tinctures and topicals. Tablets and capsules don't give you the opportunity to get a good start by using the membrane under your tongue to send active elements directly to your brain. By swallowing dosages, they have to go through your digestive system and take a lot longer to be helpful.

I also advocate and seek the entourage effect with the use of THC which by the way does reduce pain.

In the morning, I use 50ML of a 1:1 CBD/THC tincture. I call it my "get up and go" routine. In the afternoon, depending on my pain and discomfort or activities like MFR, I may repeat that dosage.

In the evening, I use 75ML of 2:1 CBD/THC as I seek a calming down and ready-to-sleep status. That's it.....and that is all I need. I have been sleeping well for quite a few years now.

Please ask any questions that come to mind. I am here for you.
May you be free of suffering and the causes of suffering.

Chris

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Chris, thank you for this. I livee we near a dispensary in Des Moines and the staff is helpful but not experienced in specific pain or it’s best relief path. I’m going to try your suggestions and hope to reduce ibuprofen use during the day and sleep better at night. Thx again

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