Hair Loss and MAC
Has anyone found since having MAC-lung they have hair loss? I am not yet on the antibiotics and have noticed this. Other reasons have been ruled out. Thanks very much. (I also have bronchiectasis.)
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How did you get over hyperthyroidism? Also I would think any chronic infection would make you lose hair...
The endocrinologist believes mine was caused by the heavy metals in my body, I was treated with the usual med to calm it down. As the heavy metals left, the thyroid healed. That was fortunate, because I was headed for radiation to kill the thyroid - we had to delay it for some reason, and 2 months later my tests started to normalize just after my metal tests returned to the normal range.
It is still monitored with bloodwork every three months, because I understand it can return.
Sue
Before being diagnosed with MAC and bronchiecstasis, I was taking nicotinamide mononucleotide (NMN) supplements. It is a natural product, an immune booster by way of DNA repair. Also some evidence of anti-aging AND hair growth. Boby builders have been using it for years. My biochemist daughter researched NMN and its manufacture in depth, recommended MAAC10 brand (for purity), and now our whole family uses it. We all have grown an astonishing new crop of black hair even though we all had medium to light-brown hair when younger. Dose: 50mg per 50 pounds of body weight. I divide dose, first thing in morning, and just before bed on empty stomach. I'm 84 by the way, survivor not only of a serious MAC infection but also of breast and endometrial cancer. I'm convinced NMN has something to do with my still being alive and in surprisingly good health, even without chemo and inhalers and antibiotics (I'm hypersensitive to chemicals). Every body is unique in some respects, so this is NOT a blanket endorsement, but it might be worth it to research on your own.
That's interesting. I have read about that. I sometimes wonder, too, if the hair dye (which I sometimes use) can cause it. It's tough to know how much it is related to Mac itself, prescriptions, other environmental factors, and so on. Thanks for sharing your experience.
Mine had nothing to do with hair dye or the environment. I had metallosis - chromium and cobalt poisoning from deteriorated metal-on-metal hip implants. This was a huge problem in the U.S., Europe and Great Britain in the early 2000's. Fortunately they are no longer used.
Sue
Well, whoops. The dose is 50mcg, not 50mg,
I'm glad they are no longer using that stuff. That must have been awful. Thanks for the awareness about that.
I'm glad the supplements were able to help you. It sounds like you sure have been through a lot and I'm so glad you found the NMN. Thanks for writing about what you have been through.
Yes, definitely start them separately. I did the mistake of doing them all at once in full dose and my body could not handle it. I wish my doctor advised me correctly. It took months to figure out that all the awful side effects came from Rifampin and when I stopped taking it, they went away. Now I am starting Amikacin. I pray my body can handle it.
Hi, thank you for responding. I have made an appointment with an Infectious Disease Dr. Will see her in a few weeks. Hopefully she will put me on the right path and let me try the meds one at a time. I'm 75 and have perfect hearing and perfect eyesight. Haven't even had cataracts yet. I have a lot of faith that this will all work out for the best. I hope you can tolerate Amikacin.