← Return to Joint Pain after Organ Transplant
DiscussionJoint Pain after Organ Transplant
Transplants | Last Active: Oct 9 8:39am | Replies (85)Comment receiving replies
Replies to "Good morning, I hope everyone is enjoying this beautiful Saturday morning. I still have issue with..."
Been there. Could barely dress myself. Couldn’t get out of a chair without help. I was told by my PCP it was old age, likely arthritis, so I went to a rheumatologist. It wasn’t inflammatory. Finally went to an orthopedic surgeon. He did an MRI and found bone marrow edema in all my long bones near the joints. By then I had also started getting stress fractures in my feet. He diagnosed me with CIPS (calcineurin inhibitor pain syndrome) from the Tacrolimus. The good news is it usually goes away within a year or two. For me the worst was over about 8 months after it started. Gabapentin got me through it. BTW, there’s still a transplant doctor that says it’s all in my head. Be your own advocate. I went to 5 doctors before I found someone who would listen.