1. < Post-COVID Recovery & COVID-19

Anyone taking Naltrexone for Long COVID?

Posted by jamie08 @jamie08, Jul 12, 2023

Just wondering what people’s experience with naltrexone is, does it help, what dose worked best for you? My Dr. Is trying me on Low dose naltrexone and I’m curious what others experienced.

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elliep | @elliep | Oct 10, 2023
In reply to @dandoss63 "My symptoms mimic CFS as well. It gets worse every time I get another round of..." + (show)
@dandoss63

My symptoms mimic CFS as well. It gets worse every time I get another round of Covid. Takes a solid month to get any energy back.

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i would think LDN will help you too.
what other CFS symptoms do you have and what do you do for them?

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dand63 | @dandoss63 | Oct 11, 2023

@elliep - Other CFS symptoms besides fatigue:
Sleep problems: insomnia - even taking OTC sleep medications does not help much
Pain: Headache (been ongoing for a couple of weeks at this point)
Cognitive difficulties: difficulty concentrating and remembering things, and processing information.
Flu-like symptoms: low-grade fever

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carlosmayo | @carlosmayo | Oct 11, 2023
In reply to @dandoss63 "My symptoms mimic CFS as well. It gets worse every time I get another round of..." + (show)
@dandoss63

My symptoms mimic CFS as well. It gets worse every time I get another round of Covid. Takes a solid month to get any energy back.

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By "another round of covid" do you mean getting a new covid infection or getting a covid vaccine/booster?

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carlosmayo | @carlosmayo | Oct 11, 2023
In reply to @emo "Glad it’s working for you. That’s so interesting because the liquid formulation is much more expensive..." + (show)
@emo

Glad it’s working for you. That’s so interesting because the liquid formulation is much more expensive at the compounding pharmacy closest to me, but I’m glad you found something that works.

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The compounded pills were so expensive that my doctor recommended that I make up my own liquid. I dissolve a single 50mg tablet in 50ml water and then use a syringe to take 3ml/day of the liquid. My costs went from about $1,200 a year to now under $10 (because the compounded pills were not covered under my insurance while the standard 50mg tablets are covered).

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ramsay | @ramsay | Oct 22, 2023

I am looking for answers. Probably fatigue is my biggest problem, with balance. Just weeks since infection, but doctors are clearly sidestepping me. Appreciate any information.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 22, 2023
In reply to @ramsay "I am looking for answers. Probably fatigue is my biggest problem, with balance. Just weeks since..." + (show)
@ramsay

I am looking for answers. Probably fatigue is my biggest problem, with balance. Just weeks since infection, but doctors are clearly sidestepping me. Appreciate any information.

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Welcome, @ramsay. There are several discussions related to long Covid and naltraxone in the support. I moved your message to this active discussion so you can read previous posts and connect with other members:
- Anyone taking Naltrexone for Long COVID?
https://connect.mayoclinic.org/discussion/anyone-taking-naltrexone-for-long-covid/
You can also use the group search to find additional related discussions:
- https://connect.mayoclinic.org/group/post-covid-recovery-covid-19/?search=Naltrexone+&index=discussions

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ramsay | @ramsay | Oct 24, 2023

Thank you. That was helpful.
Margaret Ramsay

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