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Post Covid weird symptoms

Post-COVID Recovery & COVID-19 | Last Active: May 1 12:24pm | Replies (72)

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@smdawson540

I have had long Covid for over 3 years. It took forever to have it diagnosed. I had reconstructive foot surgery in November of 2021. I have had the pins and needles all over my body. My foot got worse to the point I was crawling through my house after the point the actual reconstruction had healed. I had nerve conduction studies that showed nothing. Yet, my right leg goes completely numb and I fall and my left foot and leg swell and turn red and blue. I was not diagnosed correctly until I had skin biopsies at the Long Covid Clinic I am now with. They show I have neuropathy. I also have chronic regional pain syndrome in my foot and leg, lower back and neck. This is the extreme version of neuropathy. I am now taking gabapentin(neurotin) to help with this. My pain management doctor says I will always have pain. I have light headedness and dizziness. I have been diagnosed with POTS. I wear an abdominal binder so I can sit and stand up without passing out. I have started therapy. Will see how that turns out. Please be sure to do some research about your symptoms on such sites as the Mayo Clinic, NIH or Johns Hopkins. You need to be a self advocate as much as possible. I had so many tests done over the years that showed nothing. I felt like I was crazy. Long covid is attacking my autonomic nervous system so every part of me is impacted. I also have gastroparesis which is miserable.

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Replies to "I have had long Covid for over 3 years. It took forever to have it diagnosed...."

I also run into things I see and trip over things I see. And am now being tested for Sjogren's syndrome. I was told by Long Covid Clinic that COVID is going through and turning on all my bad genes.

Can you tell me about your stomach issues? I’ve been long hauling for 18 months. I’m have severe stomach pain lately. Would like to hear what your experience has been.
I also have a disregulated body temperature. I swear from being hot, then chill to the bone and I’m sitting in the same spot. Weird.

Which hospital and where is it please that gave you the long covid diagnosis?