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Transplant: BK Virus

Transplants | Last Active: Apr 16 10:39pm | Replies (120)

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@stephanierp

Hi hello1234,
Nice to hear from you, as well! Please don't be shocked by my ignorance, but I do not recall the specifics. I know over the course of 3 years, I have been removed from Prednisone altogether; my amount of Mycophenolate Acid was reduced to the lowest dose possible, after BK issues; and I was removed from Tac and placed on modified Cyclosporine, after a horrible bout of pancreatitis. I am often slightly below the recommended ranges of imunno level (trough) in my bloodwork, but it is a price I have to pay to keep BK virus at bay. And my creatinine levels are really good, and the new kidney seems really happy anyway:)

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Replies to "Hi hello1234, Nice to hear from you, as well! Please don't be shocked by my ignorance,..."

Hi @stephanierp 😊
Your journey sounds very similar to mine! I was a 30 day taper of Prednisone and my Mycophenolate was reduced to the lowest dosage because of BK. I am still on TAC.
What were you symptoms of pancreatitis? (I was unaware that pancreatitis is a possible adverse effect from TAC).
My creatinine currently bounces between .9 and 1.1. What is your current range of creatinine and do you find that it bounces around or do you test the same number each time?
Thanks so much for sharing. It's so helpful to discuss all this with someone who understands!