People with ET do not necessarily need to go to a state-of-the-art cancer center. I can't afford that either. My area hematology oncologist is plugged into the Mayo Clinic for MPN updates, so I get good care.

A good internist with an interest in hematology should be able to help.

If you have a primary care doc, tell him your situation and ask if his office can help you find a specialist within your insurance coverage.

Good luck. I have been in your situation, and the fact that a working young person is denied care is an absolute stain on our nation.