Chronic Pain members - Welcome, please introduce yourself

Thank you for your reply oldKarl,

i read about it the past few hours and will be talking to my rheumatologist dr in a few weeks. He is exteemely concerned, sent me to other specialists, even had a lung biopsy. Its in my left upper lobe, the surgeon i saw said the biopsy another dr did was inconclusive so if it doesnt get any smaller by spring ghe wants to perform surgical biopsy. The ATtR diseases makes sense in my case, GI, lower back pain at kidneys, bladder infection last year caused sepsis and new horrible shellfish allergy. The overall weakbess, neuropathy, hand, and leg pains are worse than my normal arthtitis pains. Ive been a good patient keep trying to be positive and, take short walks on beach when i can. Your reply is so appreciated, many thanks!!! Hoping you are feeling as well as can be yourself.

Julie

Hi Marilyn, im new here too. I was duagnosed with fibro about twenty years ago. It sas it good days and bad days. So sorry you gad to be in hospital im sure it was most difficult. Hoping and praying you get to feel better soon. I use ice and heat alot to help with mine. Ive also been doubling my socks and wearing slippers to add cushion, its been helping.

Take care and talk soon,
Julie

Hello @emme, welcome to Connect. Thank you for introducing yourself to the other members of the Chronic Pain group.

Here are some other discussions that you may find relevant regarding the ailments you explained above and can meet other members experiencing similar things:
- Fibromyalgia Pain, http://mayocl.in/2hgUGcv
- After knee replacement surgery, http://mayocl.in/2bVSUwB (members also discuss back spasms in this discussion)

I look forward to seeing more posts from you Emily.

Hi @philio66, and welcome to Connect. I am sorry to hear about your suffering with peripheral neuropathy. You came to the right place to get involved in discussions with other members, we are glad to have you!

Here are a few discussions I think may help you get started:
- Anyone here dealing with peripheral neuropathy? http://mayocl.in/2aWCYXq (includes many active members for you to Connect with)
- Swollen foot, http://mayocl.in/2iD43jN (some members discuss neuropathy, but not as many as the above conversation)

These conversations should help you get started in meeting other members, I look forward to seeing more posts from you in the near future!

Hello @jewel8888, welcome to Connect. Thank you for telling the other members the ailments you have to deal with.

Here are some discussions taking place on Connect that are relevant to your listed symptoms and where you can meet other members experiencing things similar to yourself:

- Chronic rib & feet pain, http://mayocl.in/2iZsDfG (it is a brief discussion but includes a member who has both psoriatic and RA that you may want to Connect with)
- Alcohol, http://mayocl.in/2jgkPpE (don't let the title scare you off, it is in the Autoimmune Diseases group and is in regards to having lupus)
- Sjogrens, http://mayocl.in/2gYI8Uv
- Fibromyalgia pain, http://mayocl.in/2hgUGcv
- Lung Cancer - Improved diagnosis, http://mayocl.in/2ewF3sB

I hope that these discussions provide a good place to start for you. I look forward to seeing more posts from you in the future.

@emme I have fibro also and I only have one knee left which is bone on bone now. I have avoided a knee replacement as they tell me you can not get down on one knee on the ground and I do that a lot since I am a leg amputee. Also I do not know if replacement is good for me or not. Good luck. 19lin

@marilyn624 Don't feel alone most of know some of what your going through. I have fibro as well as other stuff including back pain, but it mostly comes out as sciatic nerve pain in my missing leg and when it hits it is the worst. It is good that you have home support. 19lin

Thanks Justin. I have reached the point that was predicted a few years ago, that eventually opiates lose their effectiveness the longer they are used. That is exactly where I am right now. I am going to do research for medical marijuana. Minnesota has approved it's use but I am not sure who to contact. The article I read said that your doctor will not prescribe it and it seems that you must be an "extreme" case to be able to get it. Thank you for this site.

Good luck getting medical Marijuana in MN. I am a patient at United Pain Clinic, and I have a PCP and a neuro. NO ONE wants to send me to a clinic or pharmacist for medical Marijuana. No one wants the liability. It is also prohibitively expensive. I am 15 years on opiates, which they want me to stop, but they have no alternate solutions for breakthrough pain. I do it all, from biofeedback, group therapy, psych, psychologist, PT, acupuncture, dry needling, bitox, nerve ablation, steroid injections, nerve blocks, essential oils, you name it and I do it. There is no THC in Minnesota's medical Marijuana, but the Feds just doubled down and now want to classify hemp as a schedule I drug. My oxy is a schedule 2. Don't get your hopes up on MM. I wish I had a more positive experience to relay, but I only have my truth. I wish you all the best.Laurie Demit Rusin

Hi Laurie, thanks for your input. My doctor would refer me somewhere but it doesn't sound like Minnesota is an option right now. I am visiting Phoenix in February and they have marijuana clinics which have been around for a while. I am going to set up an appointment there. If that doesn't work out I may just spend a week in Colorado and test it "legally" there. Whatever happens I will let you know. I also have been on opiates for quite a while but the effectiveness is not very good anymore. Doctor wants me to lower intake also but there is NO other option. The Mpls company Medtronic makes two different spinal cord implants, one is a TENS type and one is a morphine pump. My Neurologist says they are "last resort".