Has anyone tried CBD oil to help with tremors?

Posted by mindy6 @mindy6, May 14, 2018

I'm wondering if anyone has tried CBD oil for tremors? My father in law has agent orange and has terrible tremors

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

@calguy

How did you use CBD for your tremors? Topical? Ingest? If so, what?

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It relaxes me somewhat not my seizures tho. I’m 76 yrs old.

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I tried both indica and sativa, and also some hybrids; all were devoid of THC. The gummies did little if anything for me, and the tinctures (liquid drops) did a good job of knocking me out--I have insomnia--not uncommon for those of us with PD, but since I'm also Bipolar, I simply cannot function well without plenty of sleep. I currently take Depakote to stabilize my mood. I do not take any Parkinson's med's.

The only medication that has helped me with two of the major symptoms of PD is Benztropine (Cogentin), an anticholinergic medication. It relaxes my muscles, prevents the chronic muscle spasms I was having, and best of all it helped to greatly reduce my tremors. It didn't take long for my body to experience the effects of Cogentin--within 2-3 weeks, at most. I'm now able to write, type on a keyboard (without my fingers bouncing off the keys), and now I've become highly motivated to get back into my daily regime of martial arts practice--expecially the more subtle Chinese arts of Xing Yi, Bagua, and Tai Chi--all relaxing, yet brutal fighting arts. I'm only seventy-one years old, yet I'm feeling young again, except that I've had to give up surfing--my career in life, and tennis--was a high-level player for over fifty years. I take 2 mg's of Cogentin at bedtime, have been taking it for about seven months, and haven't experienced any negative effects. Believe it or not, I feel as if I'm getting better over time instead of seeing myself as a person who's living with an incurable illness. I'm happy and grateful to be alive.

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Mayo Clinic advises that people consult with their current care provider before making any changes to their existing medication or treatment plan.

When considering complementary or alternative treatments, be open-minded yet skeptical. Learn about the potential benefits and risks. It is especially important to evaluate critically any claims made by the producers and/or sellers of supplements, natural products and other alternative medicines.

There is a great deal of hope and a great deal of hype about stem cells. That is why Mayo Clinic offers a free consult service. When you call the consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here https://www.mayo.edu/research/centers-programs/center-regenerative-biotherapeutics/connect
Or call 1-844-276-2003 to speak with one of our experts.

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@colleenyoung

Mayo Clinic advises that people consult with their current care provider before making any changes to their existing medication or treatment plan.

When considering complementary or alternative treatments, be open-minded yet skeptical. Learn about the potential benefits and risks. It is especially important to evaluate critically any claims made by the producers and/or sellers of supplements, natural products and other alternative medicines.

There is a great deal of hope and a great deal of hype about stem cells. That is why Mayo Clinic offers a free consult service. When you call the consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here https://www.mayo.edu/research/centers-programs/center-regenerative-biotherapeutics/connect
Or call 1-844-276-2003 to speak with one of our experts.

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The link noted above doesn't seem to work. I will try the phone. TA

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@tedalmon

The link noted above doesn't seem to work. I will try the phone. TA

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My apologies, Ted. Here's the corrected link to the Center for Regenerative Biotherapeutics at Mayo Clinic
https://www.mayo.edu/research/centers-programs/center-regenerative-biotherapeutics/connect

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Hello:
I have been a Parkinson’s patient for 14 years. Have had some very good results with tremor, mood, pain, flexibility.

Seek the advice of a certified MMJ doctor - which Mayo now has in Rochester so there is finitely traction in this arena.

The info about some Rochester docs taking part in the MMJ program is at the bottom of this page;
https://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/medical-marijuana/art-20137855
Peace
Larry H

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@oronogo

I was DG with Parkinson’s a year ago with a slight hand tremor. I have not started any meds yet, but I have started CBD/THC oil. I have found it has help me a lot with stiffness, sleep, it has helped my tremor, but still have them in evening when I get tired. I did consult with my movement specialist at Mayo before I started the oil, and he said still a lot of research needed but he had patients that like it....just don’t abuse. I also do the Big hand exercises daily and muscular message once a month. I am 75 years old and trying to stay off Parkinson meds as long as I can. It has really helped with my stiffness not sure how much is age related.

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I am curious to know what type of CBD oil have you tried? What brand or what is the percentage of THC and CBD?

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Confused (as always). Is marijuana best taken for PD as just CBD or should there be some THC in the marijuana as well? There must be thousands of patients who have taken CBD or THC or both to try to manage tremors or PD.
Some one needs to take a pole like they do for political issues. There are so many of us would gladly share our experiences, there must be some value in crowd sourcing out comes--that might inspire more research to prove the connection.

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Although CBD oil is THC-free, I still felt as if I'd gone back in time to my stoner 60s and early 70s when, as a full-time surfer, I'd play in rock bands to support my lifestyle. Now, at 73 yrs of age and diagnosed with Parkinson's Disease twelve years ago, I found that Benztropine/Cogentin has eliminated tremors I'd had for more than twenty years and my muscle rigidity and more recent tardive dyskinesia symptoms have greatly lessened. It may also be that I'm on a strict schedule of regular bedtime, good sleep hygiene, early rising and morning exercising before eating intermittently with no processed foods, little or no snacking, a vegan diet, and while unable to participate in high intensity sports, I toned down my sixty-plus years of Chinese martial arts to tai chi chu'an, even teaching classes and demonstrating martial applications to the few who actually want to learn the true art (unfortunately very few Americans); but they're able to gain strength and better balance/posture even if they don't care about delving into the intricacies and Chinese history and medicine that preceded the watered-down for taught by many "certified" teachers here in the states. There are so many factors that go into this progressive neurological disease that I've come to disregard what advice the so-called experts in the field--quack neurologists have told me. Proper diet, exercise, rest, and socializing are the best medicines. I'm in the process of tapering down on the small dose of Benztropine/Cogentin without any ill effects so far. If gummies or cannabis oil works for you, go for it. I've tried it as an alternative to Big Pharma and simply don't care to support the industry.

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@JustinMcClanahan

Hi @mindy6, this is a great question. I have read about agent orange and the issues it has caused so many people. I am sorry to hear that your father-in-law has tremors as a result of his exposure to this agent. I'd like to invite @johnjames and @mstephen to this discussion as they have discussed their experiences with being exposed to agent orange as well and may be able to talk a bit more about that.

@mindy6, if you don't mind sharing, have you discussed CBD oil for tremors with your father-in-laws medical provider? It is also my understanding that CBD oil without the THC can be purchased without a license, is that correct or am I mistaken?

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Hi Everyone
I think the question that many of us with PD want to know is less about how our tremors started and more about whether CBD or THC or a combination can improve or retard tremors. There must be thousands of people out there now (because marijuana is legal in all or most states) who have tried CBD who have Parkinson's disease. It would be great if everybody could weigh in with a thumbs up or thumbs down. If you have had success with it or you think it's working could you please provide the dosage and the frequency. Excuse me, I'm sightly frustrated. Why doesn't Mayo send out a questionnaire to all it's movement disorder patients across the US and ask the same questions posted above not as a scientific study but as an acknowledgement that it's patients as a group are potentially capable of indicating avenues worthy of further research?
Thanks
Peter

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