Connect
← Return to Shaking pre-liver transplant: Does this stop or reverse?
Discussion
Shaking pre-liver transplant: Does this stop or reverse?
Transplants | Last Active: Oct 18, 2023 | Replies (25)Comment receiving replies
I have the tremors in my hands sometimes, but what really bothers me is the whole body shakes that I get after bouts of dizziness. They only last about a minute and then subside. However, I have spilled things and broke things (such as a bottle of hot sauce due to the shakes). Does anyone else experience them?
Replies to "I have the tremors in my hands sometimes, but what really bothers me is the whole..."
Yes, I have had shakes since starting Tacrolimus at the time of transplant 1 year ago, with tacro levels always going up and then down. This monitoringis stressful as if levels go too high I have to lower tacro (envarsus XR) dose and if levels are too low, I have to increase doses. Increasing causes more shaking and anxiety. But I was told by my doc that changing to another med could cause possible kidney rejection. I said NO! Metoprolol helps lessen the shakes per my cardiologist and also an accepted lavender supplement called Calm Aid by Nature's Way helps too. These were approved by my TC. I just pray that I can manage these ups and downs and that is smoothes out as I am at one year. Stressful. I also take meds for anxiety and depression which help too. But grateful for kidney. BB
Connect
@chickytina, As I read your comment about feeling like your whole body is shaking, I am wondering whether you are a coffee drinker? I discovered that if I limit myself to one cup of coffee in the morning, I am fine. I had forgotten this, and while my husband and I were on vacation last month, those constant coffee refills in breakfast restaurants set my whole body into an inside shakiness and quivering. Once I remembered that that had happened in the past, I cut back on the breakfast coffee, and I felt normal again. Just an idea that I wanted to share.
As for the dizziness, how is your blood pressure?
And does it make a difference whether you take your meds with or without food? Some members have talked about that in the past. Maybe someone will add their experience here, too.