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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Mentor
Scott, Volunteer Mentor | @IndianaScott | Oct 7, 2016
In reply to @kathyv "Hi, I'm Kathy V. I have had multiple spinal fusions, starting with one for scoliosis as..." + (show)
@kathyv

Hi, I'm Kathy V.
I have had multiple spinal fusions, starting with one for scoliosis as a teenager in 1969. I had a laminectomy in 1990, and in 2006 and 2007 I had two major spinal surgeries with anterior and posterior placement of screws and plates at L4 through S1. Since then, I have suffered with chronic regional pain syndrome in my right foot and leg. Even though I am on multiple medications, the pain is constant and severe.
I'm hoping that by taking part in this group that I might find some suggestions for relieving this neurologic pain.

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Hi @jimhd It varied over time, but at one it time it was 120 x3. That said she had a spiral fracture in her spine for two years + before a doctor took a unique angled image and discovered it. The damage by that time was extensive. I understand that every patient is unique, but my wife was on some level of opioids for at least 30 years.

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Oct 7, 2016
In reply to @cousinsteph "Hello everyone. I am a 50 year old email with several chronic pain issues. RSD in..." + (show)
@cousinsteph

Hello everyone. I am a 50 year old email with several chronic pain issues. RSD in foot/leg , Degenerative disc disease in my back, and trigeminal neuralgia in my face. I have had RSD since 1998. I am on Disability (after quite a struggle). I thought I would check in here and check out the topics and make some new friends hopefully.

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Hello Cousinsteph and welcome to Connect. You have found a great place to meet new friends that are going through things similar to yourself. You mentioned RSD, degenerative disc disease, and trigeminal neuralgia as some of your ailments. You may find these threads of interest as they may contain information relevant to your struggles and help you meet some members who are experiencing things similar to yourself:

- RSD/CRPS http://mayocl.in/2dk3ucb
- After knee replacement, I developed RSD http://mayocl.in/2cX10nN
- Retired RDT with degenerative disc disease http://mayocl.in/2dS58Hj
- Trigeminal neuralgia http://mayocl.in/2bVAIAl

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grandmacheryl | @grandmacheryl | Oct 7, 2016
In reply to @kathyv "Hi, I'm Kathy V. I have had multiple spinal fusions, starting with one for scoliosis as..." + (show)
@kathyv

Hi, I'm Kathy V.
I have had multiple spinal fusions, starting with one for scoliosis as a teenager in 1969. I had a laminectomy in 1990, and in 2006 and 2007 I had two major spinal surgeries with anterior and posterior placement of screws and plates at L4 through S1. Since then, I have suffered with chronic regional pain syndrome in my right foot and leg. Even though I am on multiple medications, the pain is constant and severe.
I'm hoping that by taking part in this group that I might find some suggestions for relieving this neurologic pain.

Jump to this post

Hi Kathy! Your symptoms and medical history sound similar to mine. I'm a little bit older than you--I was in my mid-20s in 1969 and now I'm 71. I have had 4 spinal surgeries (2 cervical, 2 lumbar), and I too have neuropathy in my right foot and lower leg--have had it for 3 years. It gets worse when I sit for a long period of time, or when I'm on my feet for any length of time--talk about being between a rock & a hard place. I've tried gabapentin, but after taking it for 6 weeks it hasn't done any good. so I'm in the process of weaning myself off from that. Some people do find it helpful, though. My most recent lumbar surgery was 2 years ago, and for a while the burning sensation in my leg got better but never fully disappeared. It's gotten worse in the last year or so. I saw the surgeon's PA in June. He diagnosed me with "post-laminectomy syndrome." I looked that up on the internet and saw that another term for it is "failed back surgery syndrome." I'm going to look into injections, although they didn't help back in 2014. If that doesn't work I will try to get a thorough exam at either Mayo in Scottsdale or the Barrow Neurological Institute in Phoenix (I live in west Texas). Beyond that, I'm not sure what I will do. Sorry I haven't been able to give you much advice here, but I wanted to assure you that you are not alone! If I find some relief I'll definitely let you know. Wishing you the best, Cheryl

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nodunk | @nodunk | Oct 7, 2016

have severe chemo induced peripheral neuropathy. looking for someone who has done Calmare scrambler therapy at Mayo or anywhere else. not interested in resposes about drugs or natural remedys-do not work for me,

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safetyshield | @safetyshield | Oct 7, 2016
In reply to @kathyv "Hi, I'm Kathy V. I have had multiple spinal fusions, starting with one for scoliosis as..." + (show)
@kathyv

Hi, I'm Kathy V.
I have had multiple spinal fusions, starting with one for scoliosis as a teenager in 1969. I had a laminectomy in 1990, and in 2006 and 2007 I had two major spinal surgeries with anterior and posterior placement of screws and plates at L4 through S1. Since then, I have suffered with chronic regional pain syndrome in my right foot and leg. Even though I am on multiple medications, the pain is constant and severe.
I'm hoping that by taking part in this group that I might find some suggestions for relieving this neurologic pain.

Jump to this post

I also have scoliosis and it is not that I feel pain but sitting and sometimes standing can cause discomfort. As an adult I tried going to a chiropractor who happened to be someone I new from classes we were taking. He only took what my insurance took. So what the heck I went twice a week. My point is that it did help relieve some of my neck and back pain. I do not know how it will affect you but I am just bringing it out to you for a thought

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safetyshield | @safetyshield | Oct 7, 2016
In reply to @foxylady "Hello, I am Fran Clark, my name is misspelled in my e mail address my error...." + (show)
@foxylady

Hello, I am Fran Clark, my name is misspelled in my e mail address my error. left out the r. I have renal carcinoma, tumor went to spine L2, L3 and now they are completely destroyed. from there, I have bone cancer, about 10 fractures (small) cancer broke clavicle, humerius
tail bone, and now 2 lymph nodes show cancer in my abdomen( I don't know what next will be. Little pissed off right now (sorry for the language).

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Welcome Fran I hope this conversation group will help in any way we can. As for your language here let it out. The more you are yourself the more this group can try to meet your needs. Welcome again

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edieguinn | @edieguinn | Oct 7, 2016
In reply to @kathyv "Hi, I'm Kathy V. I have had multiple spinal fusions, starting with one for scoliosis as..." + (show)
@kathyv

Hi, I'm Kathy V.
I have had multiple spinal fusions, starting with one for scoliosis as a teenager in 1969. I had a laminectomy in 1990, and in 2006 and 2007 I had two major spinal surgeries with anterior and posterior placement of screws and plates at L4 through S1. Since then, I have suffered with chronic regional pain syndrome in my right foot and leg. Even though I am on multiple medications, the pain is constant and severe.
I'm hoping that by taking part in this group that I might find some suggestions for relieving this neurologic pain.

Jump to this post

I tried a chiropractor years ago but he discharged me after months. He couldn't help with my issue. I appreciated his honesty.

REPLY
safetyshield | @safetyshield | Oct 7, 2016
In reply to @kathyv "Hi, I'm Kathy V. I have had multiple spinal fusions, starting with one for scoliosis as..." + (show)
@kathyv

Hi, I'm Kathy V.
I have had multiple spinal fusions, starting with one for scoliosis as a teenager in 1969. I had a laminectomy in 1990, and in 2006 and 2007 I had two major spinal surgeries with anterior and posterior placement of screws and plates at L4 through S1. Since then, I have suffered with chronic regional pain syndrome in my right foot and leg. Even though I am on multiple medications, the pain is constant and severe.
I'm hoping that by taking part in this group that I might find some suggestions for relieving this neurologic pain.

Jump to this post

Sorry about that how about acupuncture. I am just shooting some ideas hoping something will help

REPLY
edieguinn | @edieguinn | Oct 7, 2016
In reply to @kathyv "Hi, I'm Kathy V. I have had multiple spinal fusions, starting with one for scoliosis as..." + (show)
@kathyv

Hi, I'm Kathy V.
I have had multiple spinal fusions, starting with one for scoliosis as a teenager in 1969. I had a laminectomy in 1990, and in 2006 and 2007 I had two major spinal surgeries with anterior and posterior placement of screws and plates at L4 through S1. Since then, I have suffered with chronic regional pain syndrome in my right foot and leg. Even though I am on multiple medications, the pain is constant and severe.
I'm hoping that by taking part in this group that I might find some suggestions for relieving this neurologic pain.

Jump to this post

I'll make it easier. Lol. Acupuncture, nerve blocks, spinal, PT. Not a candidate for spinal cord stimulator. My pain doctor has tried and recommended all he can. That's why we resorted to percoset but I haven't taken one yet. Pool walking, stretching classes and massage therapy

REPLY
susanlorrie | @susanlorrie | Oct 7, 2016
In reply to @foxylady "Hello, I am Fran Clark, my name is misspelled in my e mail address my error...." + (show)
@foxylady

Hello, I am Fran Clark, my name is misspelled in my e mail address my error. left out the r. I have renal carcinoma, tumor went to spine L2, L3 and now they are completely destroyed. from there, I have bone cancer, about 10 fractures (small) cancer broke clavicle, humerius
tail bone, and now 2 lymph nodes show cancer in my abdomen( I don't know what next will be. Little pissed off right now (sorry for the language).

Jump to this post

Hello Fran, I'm pretty certain no one hear cares about your language they only care about you and how you feel. I will keep you in my thoughts (and prayers if that does not offed you). Please take care of yourself and let us know how you are doing.Lorrie

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