Persistent Muscle Twitches throughout Body

I'm in a similar boat. It started 2 years ago with my middle right foot toe. Involuntary wiggling. It progressed to random involuntary limb movement which comes and goes depending on the week or month. When my current neurologist, bless his heart but F his timing, casually mentioned it might be ALS, oh I slept great that night.

Now I have some pretty bad RLS in my left foot when sleeping, and what feels like energy buzzing in my legs, with a feeling of internal tremors and occasional twitching fingers for good measure. Like you, they go somewhat unnoticed during daily activities. The biggest concern now is inability to fall asleep and stay asleep. I get on average < 5 hours a day, but that's being in bed for around 7. I pretty much ruled out ALS since I don't have muscle wasting, and was fairly convinced it was related to Parkinson's, and I still kind of do, but again, I seem to have symptoms not associated with it, and don't have some that do. That brings a marginal amount of comfort. I know there's a huge controversy around this, and I'm only interested in facts not conspiracy, but I have to know if you've taken the vaccine and how many. I'm trying to be as open minded about this as possible, but when Dr.Google tells you it might be all these awful things, you wonder if it might be that new coffee you're drinking, lack of a vitamin, or a bad food habit you recently picked up; something you actually can fix on your own. I just want to be thorough, and open to all possibilities, because I've seen 4 Neurologists so far, and they've all basically shrugged.

I wish you the best to get answers, peace of mind, and good health.

-Brandon

Yes! Experiencing it right now. I’ve had it for the last week.

From all my research, it appears to be excess histamine. Cortisol is that active ingredient that fights histamine from getting too bad in our bodies. And I just found out my cortisol is flatlined… so makes sense.

If you haven’t yet, get a full hormone panel done.

Hi. Sorry to hear you are having this. You mentioned the last two years, but not your age. I’ve had RLS since my mid-30s and am now 69. So I can’t speak to vaccines and other environmental factors, except that they likely aren’t my cause. Then again, as kids we used to love to run behind the mosquito fogging truck and I was a decent runner, so I was up there in full fumes. We laugh about it as a stupid kid memory, but who knows what toxins I took in. Good luck with your situation.

There is a link between the Covid vaccines and muscle twitches/tremors. Even the medical professionals are reporting they were injured in this way:
https://www.medscape.com/sites/public/covid-19/vaccine-insights/how-concerned-are-you-about-vaccine-related-adverse-events
Information about neurological injuries from the Covid vaccines is available at the Neuro V Long-Haulers Facebook group or React19.org. The first symptom of the peripheral neuropathy I developed after the Pfizer vaccine was spasms in my big toe.

@moconnor166 Hi, Good Afternoon
I am very sorry you have been going through that.
I also had some twitches, especially at night, waking me and my husband up many times in the middle of the night. The doctor said it was a side effect of the medication (AED and anti-depressive). Now that I am off those medications, thankfully, being treated with a more natural approach (medical cannabis, diet, yoga, etc), those twitches are gone. Have a look at the side effects of the medications you are taking. Perhaps those twitches come from them?
After going through very difficult moments with medications in my epilepsy journey, I would also schedule an appointment with a doctor of integrative medicine, which combines traditional medicine and ancient medicines (Ayurveda, Chinese) and homeopathy, if I were in such a situation.
All my best to you!
Chris (or Santosha)

Thank you so much, Chris. I have been searching for a reason for my life partner's constant twitches. When they wake him up he is in agony and we struggle to calm his body down.

I am a 100% advocate of integrative medicine. Having used medical cannabis for 10 years now, I am assured of its capabilities to reduce pain and discomfort without any negative reactions.

May you be free of suffering and the causes of suffering.
Chris

I'm in a similar boat. It started 2 years ago with my middle right foot toe. Involuntary wiggling. It progressed to random involuntary limb movement which comes and goes depending on the week or month. When my current neurologist, bless his heart but F his timing, casually mentioned it might be ALS, oh I slept great that night.

Now I have some pretty bad RLS in my left foot when sleeping, and what feels like energy buzzing in my legs, with a feeling of internal tremors and occasional twitching fingers for good measure. Like you, they go somewhat unnoticed during daily activities. The biggest concern now is inability to fall asleep and stay asleep. I get on average < 5 hours a day, but that's being in bed for around 7. I pretty much ruled out ALS since I don't have muscle wasting, and was fairly convinced it was related to Parkinson's, and I still kind of do, but again, I seem to have symptoms not associated with it, and don't have some that do. That brings a marginal amount of comfort. I know there's a huge controversy around this, and I'm only interested in facts not conspiracy, but I have to know if you've taken the vaccine and how many. I'm trying to be as open minded about this as possible, but when Dr.Google tells you it might be all these awful things, you wonder if it might be that new coffee you're drinking, lack of a vitamin, or a bad food habit you recently picked up; something you actually can fix on your own. I just want to be thorough, and open to all possibilities, because I've seen 4 Neurologists so far, and they've all basically shrugged.

I wish you the best to get answers, peace of mind, and good health.

-Brandon