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EPI meds expense

Pancreatic Disorders | Last Active: 1 day ago | Replies (267)

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The prescription enzyme I take is 368.00 a month copay. Without insurance it is over 2000.00 a month! I’m looking for an affordable over the counter pancreatic enzyme with comparable lipase dosage of 40,000 units. I would appreciate any suggestions, as the diarrhea caused by this condition is intolerable.

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Replies to "The prescription enzyme I take is 368.00 a month copay. Without insurance it is over 2000.00..."

Hi I have EPI after having pancreatic neuroendocrine cancer and surgery and have now been on Creon for almost 3 mos., which has helped me significantly! I don't know how old you are, but I am on Medicare. I now have an AARP Medicare RX supplement through UnitedHealthcare that has covered the whole cost of Creon this year for me. I've had some other RX expenses to where the Medicare $2000 RX cap has been met (see https://www.panfoundation.org/understanding-the-medicare-part-d-cap/), but I think without that, my cost would have been $136 co-pay for my initial first 90 day supply, then $0. So, if you're on Medicare, you might at least want to check this out for next year. Hope this info is help!

PS I almost forgot. ..Also check out Healthwell Foundation https://www.healthwellfoundation.org/about/what-we-do/. They provide financial assistance through grants for certain chronic diseases. Walgreens told me about them and I got grant approval thru them for another med I'm on. The diseases are listed https://www.healthwellfoundation.org/disease-funds/.

Hi everyone!
After 32 years I was finally diagnosed by a Registered Dietitian (even though my GI tested me in 2021 and 2023 through fecal and blood tests, both yielded “normal” results) with Exocrine Pancreatic Insufficiency (EPI). I’ve started Now Super Enzymes and felt relief the same day! My bloating, gas and cramping drastically reduced. After 2 weeks, I’m starting to see bloating increase and I’m feeling discouraged! My GI prescribed Zenpep and I’m just waiting on my RD to agree to switch to Zenpep. Has anyone else delt with extreme bloating and have success with Zenpep? My RD is confident that if her hypothesis is correct and I do have EPI, I can live a symptom free life.
I also have hashimotos, rayneauds, and gallbladder removed.
Thanks!

The only over the counter one I’ve tried is the one I mentioned which has much less USP than prescription.

I had a EUS (esophagus sonogram with endoscope) to confirm my EPI/pancreatitis and rule out cancer. I agree with the previous comment regarding finding a new gastrointestinal Dr. I started taking ZenPep but they were too big for me to swallow so we switched me to Creon.
Much better. Adjusting the dosage is very common so try not to get discouraged. Your dietician can help you with the vitamins you will need. I had the same results on my fecal. Please request a sonogram as an endoscope alone isn’t enough. I have cysts and atrophy of my pancreas so I need to be proactive. I hope this helps you!