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EPI meds expense

Pancreatic Disorders | Last Active: 1 day ago | Replies (267)

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The prescription enzyme I take is 368.00 a month copay. Without insurance it is over 2000.00 a month! I’m looking for an affordable over the counter pancreatic enzyme with comparable lipase dosage of 40,000 units. I would appreciate any suggestions, as the diarrhea caused by this condition is intolerable.

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Replies to "The prescription enzyme I take is 368.00 a month copay. Without insurance it is over 2000.00..."

Maybe a different brand, like creon but I would ask my pharmacist bout options

I have EPI and is very painful, I take 36000 units x 3 daily
I know that you can get help from “ National Pancreas Foundation “
From MyAbbieAsist, 1(800)222-6885, or maybe Mayo Clinic’s Moderators and Mentors can give you and advise. Hopefully everything will be fine.

Thank you so much! I will follow up on this. I so appreciate your feedback and a couple of new resources to contact.

Also try Singlcare or Blink health discount for med discount.

Have you tried an interventional doc for low cortisol. She directed me to an enzyme site. She believes in natural. May or May not work. But it’s worth a try. That’s unreal on the price.

Yes I have. So I ordered DHEA as a spray. Got sick on it and some pill. Same issue. She had me try ashwagandha, it raised it,, and was it from that I don’t know. Used Goli brand. After I told her the recommendation she gave did not work, she just advised Ashwagandha. Round and round we go. But she did the saliva test which Mayo states is the best. Everyone else disagrees. Upset!!

Diagnosed one week ago and SO many questions. Prescribed very expensive Zenpep. Can I eat as normal while taking these capsules? Need info on dosing, foods I can eat without dosing, etc. Doctor no help with this. He just says take one capsule before a snack and two before a meal.

I’m on ZENPEP. Medicare doesn’t cover Creon. Worked great for the first 3-4 months, now I’m back where I started. Hard to get hold of my doc and he seems indifferent to helping me. From what I have seen, most Gastroenterologists seem to lack any empathy for their patients. I had a great one years ago, he was the top world wide doc in the field. He treated my sister for severe Crohns issues. He called her his miracle child. I also saw him for GI issues. He had a great bedside manner, was patient, informative, and gentle. Unfortunately, he’s retired now. I wish I could find someone like him. The guy my sister goes to now is different than my doc, but she says the same thing I do, he’s not very good. I have seen so many complaints about doctors not being empathetic at all. I don’t know if it’s because they have too many patients with issues, or if they just don’t give a damn. I wish you the b3st of luck.

Amazon and other stores have Vital Nutrients Pancreatic Enzymes with 36500 units lipase. Much more affordable. I take it and it works well, just have to figure out how many a day keeps the diarrhea in check. Be sure to scroll down and enlarge the fine print on the ingredient list to make sure you’re getting the right dose. It’s about 80.00$ for 180 capsules. I’m getting by with one at lunch and dinner each, but it’s very individual what each of us needs.

Anthem charges me $649 for 36000units. 8 per day.