Persistent Muscle Twitches throughout Body

This may be late but still relevant. October 8th, 2023….I have jerks or maybe twitches and just yesterday worried about maybe there is some risk in driving. I was on the Freeway when a couple of jerks hit one of my arms. I was able to control the steeering but wondered if it might be worse next time? Anyway…it is a manifestation of my “Essential Tremor” according to my Doctor, who responds that I need to rely on my Propanerol Medication for it. Thanks and luck! Glenn

Hello all, I started having twitching and didn't think much of it at first but, it became persistent and moved from my shoulders to my arms, then my sides etc. I was later diagnosed with cervical Myelomalacia, which is softening of the spine.....and this is one of the symptoms. It can be diagnosed with an MRI of the neck. It could be in the lumbar area also. Best of luck to you getting answers.

I have nerve damage because of SS. I take 900 mg of gabapentin every night for RLS. After a few hours the gabapentin wears off, then the RLS returns. It woke me up at 5:30 this morning and would not let me go back to sleep. I also have TMJ, just doing nothing in bed every now and then my body jerks around. The TMJ caused me to bite my tongue. Bloody mess. So, you might want to as your doctor about gabapentin.

I have lots of twitching, plus neuropathy, and my neck and spine is NOT in good shape.

My twitching (or Jerking) is intermittent with a reduction after more intense workouts or labor. My lumbar is in good shape but undiagnoised, something your post have prompted. Thanks and best of luck!

@moconnor166 Hi, Good Afternoon
I am very sorry you have been going through that.
I also had some twitches, especially at night, waking me and my husband up many times in the middle of the night. The doctor said it was a side effect of the medication (AED and anti-depressive). Now that I am off those medications, thankfully, being treated with a more natural approach (medical cannabis, diet, yoga, etc), those twitches are gone. Have a look at the side effects of the medications you are taking. Perhaps those twitches come from them?
After going through very difficult moments with medications in my epilepsy journey, I would also schedule an appointment with a doctor of integrative medicine, which combines traditional medicine and ancient medicines (Ayurveda, Chinese) and homeopathy, if I were in such a situation.
All my best to you!
Chris (or Santosha)

While waiting for neurologist, you should do a thorough blood test with your primary that includes B1, B6, B9, B12, D, homocysteine, electrolytes, ferritin.

I'm in a similar boat. It started 2 years ago with my middle right foot toe. Involuntary wiggling. It progressed to random involuntary limb movement which comes and goes depending on the week or month. When my current neurologist, bless his heart but F his timing, casually mentioned it might be ALS, oh I slept great that night.

Now I have some pretty bad RLS in my left foot when sleeping, and what feels like energy buzzing in my legs, with a feeling of internal tremors and occasional twitching fingers for good measure. Like you, they go somewhat unnoticed during daily activities. The biggest concern now is inability to fall asleep and stay asleep. I get on average < 5 hours a day, but that's being in bed for around 7. I pretty much ruled out ALS since I don't have muscle wasting, and was fairly convinced it was related to Parkinson's, and I still kind of do, but again, I seem to have symptoms not associated with it, and don't have some that do. That brings a marginal amount of comfort. I know there's a huge controversy around this, and I'm only interested in facts not conspiracy, but I have to know if you've taken the vaccine and how many. I'm trying to be as open minded about this as possible, but when Dr.Google tells you it might be all these awful things, you wonder if it might be that new coffee you're drinking, lack of a vitamin, or a bad food habit you recently picked up; something you actually can fix on your own. I just want to be thorough, and open to all possibilities, because I've seen 4 Neurologists so far, and they've all basically shrugged.

I wish you the best to get answers, peace of mind, and good health.

-Brandon

Yes! Experiencing it right now. I’ve had it for the last week.

From all my research, it appears to be excess histamine. Cortisol is that active ingredient that fights histamine from getting too bad in our bodies. And I just found out my cortisol is flatlined… so makes sense.

If you haven’t yet, get a full hormone panel done.

Hi. Sorry to hear you are having this. You mentioned the last two years, but not your age. I’ve had RLS since my mid-30s and am now 69. So I can’t speak to vaccines and other environmental factors, except that they likely aren’t my cause. Then again, as kids we used to love to run behind the mosquito fogging truck and I was a decent runner, so I was up there in full fumes. We laugh about it as a stupid kid memory, but who knows what toxins I took in. Good luck with your situation.