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@marytheresacll

Very unusual at the age of 31, but happy to hear that your WBC is only marginally over the normal range. I am 66 and was diagnosed with cll just under two years ago. I went to the doctor because of exhaustion and and being unstable sometimes while out for a walk. Has anyone else experienced this dizziness or being unstable? l also pick up colds very easily, which in the past was not the norm. I have been active all of my life and have played almost every sport in the past, now it's pickleball. My first out of whack number was 18 (normal range 4-11 X E9/L), but now after almost two years it is at 86 and I am still on the watch and wait program because I do not have the other symptoms you mentioned. More concerning for me are my lymphocite counts which have gone from 14.5 (normal range 1-3.5 X E9/L) to 70. I am reading that when lymphocite numbers more than double in six months it is a more aggressive cll and prognosis is not as good. I have not had any tests done and last time I asked for more probing, so they are doing a blood test to do with the DNA. I also go for blood work every two months.
Originally I was told that my WBC would level out most likely and just stay there probably for years and this has never happened. Numbers just keep elevating and they have never leveled out so that is very bothersome. Exhaustion is my main complaint which leads to me doing less so I really have to talk myself into doing things. So I do things such as pickleball and dance because I know I have to but cannot maintain the level that I use to.
My husband died when I was 50 so I would like to hang around until my 80's for the kids (grown up. ha). Geez my mother is still alive at 92! I am from Canda so my numbers may be a different reading.

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Replies to "Very unusual at the age of 31, but happy to hear that your WBC is only..."

Welcome to Connect @marytheresacll. Thank you for sharing your experience with CLL so far. Being in the watch and wait period (or active surveillance) can be a little stressful when you keep wondering ‘what’s going to happen and when’….
CLL is generally slow to develop. There are treatments which can slow the progression of the disease. Statistics show the survival rate for CLL is better than for many other types of cancer.

Here’s a link to an informative article about CLL.
https://www.verywellhealth.com/cll-prognosis-5211991
It’s important that you’re having the blood tests every 2 months to keep tabs on the changes, especially with the increase in your WBC. Have you had a bone marrow biopsy and exam?