Hello to all of you that wrote in regarding their FIBROMYALGIA. I’ve been severely debilitated by FIBROMYALGIA for over 30 years. I’ve also been severely disabled from CFS/ME and CHIARI MALFORMATION as well. However to address your pain management questions for FIBROMYALGIA. After taking LYRICA for 2 weeks I became very suicidal one particular day out of absolutely no where. I didn’t experience any prior suicidal thoughts and the suicidal ideation I experienced came out of nowhere but was certainly very real and very serious. I stopped taking the Lyrica prescription at once and that was the end of my experience with that. I also tried CYMBALTA and did not have any good or favorable experiences with that medication either. Keep in mind, I tried a number of other medications prescribed for certain types of neuropathy and other neurological pain issues for many years.
Frankly, the only medication that had been working the best by far for me was to continue my OPIOIDS. I was taking OPIOIDS long before they started with this treatment modality of LDN of before it had been introduced. Given the fact that it’s challenging enough to find the right type, kind and dosage of Opioid to be effective. Starting a regime of LDN is a bit like “tip toeing” in to seek adequate pain relief.
OPIOIDS have been given a very unfair reputation that they have taken on and do not deserve. Before I started taking Opioids over 30 years ago to try and find a medication and pain management protocol that was actually effective with a successful efficacy etc, it took a great deal of trial and error. Of course, most pain specialists and clinics can’t find adequate pain management without using any Opioids at all. based on a significant amount of biased and unscientific patient research plus their own subjective feelings the entire pain management protocol using Opioids in a safe ongoing treatment plan aren’t even given serious consideration any longer.
There’s a very good reason why Opioids are used and used very effectively to treat chronic pain or acute chronic pain. It’s because they are extremely effective. unfortunately, there has been so much bad press, mis information, dis information and outward lies associated with using Opioids that the “War on Drugs” has infiltrated the sacred relationships between the physician and patient relationship to try and determine which kind of pain medications will work best for their patients and the successful strategy for an efficacious treatment for a chronic long term pain situation.
The largest problem which still exists is the “Elephant in the Room.” There is an overwhelming majority of physicians who are “Woefully” undertrained and inadequately informed to successfully treat chronic pain.
The amount of poisonous Fentanyl killing people with OD’s on the streets are placed in the same category as legitimate chronic pain patients and their physicians being prescribed legitimate physician prescribed pain medications with Opioids.
This is both “CRIMINAL” extremely biased and poor research. It’s the equivalent of counting all of the fatal car accidents and placing them into the same category as those caused by alcohol and drug related auto fatalities as those that did not include any alcohol or drug related auto related fatalities. It’s complete nonsense and horribly conducted research. It’s nothing short of “MALPRACTICE!”
My suggestion to any and all of you is to find a physician who is willing to work with the facts surrounding the safe and managed use of Opioids and find a dose that provides you adequate pain management.
“Pain killers” is a misnomer. Most people with chronic pain find a way to manage it more successfully or reduce the pain from levels of 10 & 9 down to 6 & 7. Most patients never completely “kill their pain!” That may not sound like a lot but it’s quite a measurable improvement when you’re dealing with absolutely intractable pain. Finding some adequate pain relief will also assist you with obtaining some relief from your other related conditions and symptoms. If your body is having to utilize all of its energy to try and fight, manage and control pain there’s nothing left to enjoy your life with. It’s an extremely exhaustive effort. I can speak with a lot of experience and conviction on this subject. Frankly, much more so than the majority of doctors who have never personally dealt with any personal chronic pain issues. I find it interesting that any physician I’ve met who has personally had to manage their own chronic pain issues has a completely different attitude about how to treat them and what’s needed to provide a real sense of efficacy! They change their tune real fast and actually start to offer some real empathy towards their patients. Unfortunately, unless you’ve personally experienced all the pain and challenges it creates in your life it’s almost impossible to be qualified to successfully treat it.
My overall recommendation. Be persistent asking your physician to prescribe you a medication that works. Anything less than that is total BS in addition to wasting everybody’s precious time and quality of life.
Best wishes and good luck.
GODSPEED