Has anyone had IVIG Infusions for Neuropathy?

Yes I too have had several rounds of IVIG infusions.
First round was few years ago and I felt no difference in my symptoms so I stopped them.
Last year I got a new neurologist, and he felt I should try IVIG again.
I did 7 - 8 mos at home by a home nurse and I felt no difference again, so my doc discontinued them.

Same with me, and I did many months of them.

I to had IVIG with no improvement of symptoms, so now my Neurologist wants to try me on Retuximab but my insurance company won’t approve it unless I do plasma exchange first, which I do not want to do.
It’s very complicated doing plasmaphoresis and I’m so,afraid of getting an infection in my central line in my chest,which is what they have to insert first.
There’s also no guarantee plasma exchange will work.
I’m trying to work with Medicare now to let me bypass the plasma exchange and just get the Rituximab.

Please explain what IVIG therapy is. Thank you

IVIG therapy in IV immunoglobulin therapy. It is normally given once a month with IV predisone. It can reverse some of the neuropathy symptoms but not all. The IVIG therapy builds up your immunity. I took it as a child. There is a research study by Boston Hospital about two groups of people. One did IVIG and prednisone therapy the other medical marijuana. If you took anatomy and physiology in college nerves can not regenerate. In this study for over a year medical marijuana was proven to do some nerve regeneration and also helped with foot pain. It is an interesting research study.

Thank you for explaining it!! What type of doctor is knowledgeable about this therapy? I'm grasping at straws!!!!

Neurologist but truthfully I have struggled finding a good neurologist. I have been referred to the University of Heidelburg Germany there is a lot of information coming out of Germany and neuropathy. Google Dr. Anne Louise Outlander she is at the University of Boston research center. She is really interesting to listen to about neuropathy and the studies she has done. They are on YouTube where her lectures were recorded.

I learned to ask if a neurologist specializes in neuropathy. Some specializes in seizures and others in Parkinson’s.

My Neurologist tole me that the IVIG wouldn't reverse the neuropathy, but rather slow its progression. My dx is Progressive Sensory Motor Axonal Neuropathy. I too wasn't too sure that it was working until my insurance refused to continue covering it for my condition. Almost immediately, my symptoms worsened. So, it did work for me. Unfortunately, clinical studies have not been done on my specific condition so I can no longer receive the infusions.

I have an immunologist that is considering it. My understanding is they use donated plasma or something through an IV infusion to help support a deficient immune system. He’s seeing me for asthma. Discovered abnormalities in my bloodwork.
These neurologists may be trying the most recent suggestions for treatment of PN.
I think the infusion is supposed to help with inflammation.
I’m still researching.