1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

suebreen54 | @suebreen54 | May 5, 2016
In reply to @19lin "Selna I can emphasis with your situation. My father had Alzheimers and I have no brothers..." + (show)
@19lin

Selna I can emphasis with your situation. My father had Alzheimers and I have no brothers or sisters plus my Mom passed a few years before from Cancer. Luckily my wife was willing to help. My Dad was not as bad as it could have been, he stayed mobile and able to care for most of his body functions , unlike his sister who was in a nursing home the last few years of her life with Alzheimer’s. I was able to hire people to stay with Dad when one of us could not be there. Also, for good or bad, I was diagnosis with fibromyalgia a year or so before and was able to file for disability retirement from my job so I had time free to help him. If you can set up with a local group of support for Alzheimer's families that help find patient sitters to relieve you when you need it. Check on the internet for other support.<br />
<br />
Now the bad news I heard on the new that the feds are requiring all doctors who give opioids to take special training course to use those meds. This is just going to make it harder for all of us. Any day I expect to hear from my Doc that he will no longer be able to prescribe meds either because of fed regulations or his clinic’s refusal to give them out. Good luck 19lin

Jump to this post

HI in regards to worrying about using opposes there's is nothing wrong with<br />
going to a pain specialist and doing what you have to in order to get them.<br />
They are the best Dr to go to because they are going to make sure you are<br />
taking it safely. Overdosing and dieing from drinking or using other<br />
drugs will lead to death. A pain specialist will keep you from dieing. I<br />
think that's more important than keeping your Dr.<br />

REPLY
sharonmay7 | @sharonmay7 | May 6, 2016

Suebreen hi I'm sharonmay7. I totally agree with you!!!! I have been with my pain dr. For 20+years. And the only time he gives me a hard Time is if he finds other meds in you pee sample. I've taken a different pain pill a few times cause I was not home and was having a hard time. But like he said you should ALWAYS be aware what u put in your system!!! A different drug could up set your balance. That is how people end up dead. It took me years to learn how to use the medicine properly. I use the fentenol patch. And u forget sometimes cause it is always working. Once I left it on while working in my flower garden the next day when I woke up I was a mess. I did not understand that if your body temp. Warms up then the patch will down load all of the medicines at one time!!! Has anyone else out there who had this problem with the patch??? Thanks

REPLY
2 replies
19lin | @19lin | May 6, 2016
In reply to @sharonmay7 "Suebreen hi I'm sharonmay7. I totally agree with you!!!! I have been with my pain dr...." + (show)
@sharonmay7

Suebreen hi I'm sharonmay7. I totally agree with you!!!! I have been with my pain dr. For 20+years. And the only time he gives me a hard Time is if he finds other meds in you pee sample. I've taken a different pain pill a few times cause I was not home and was having a hard time. But like he said you should ALWAYS be aware what u put in your system!!! A different drug could up set your balance. That is how people end up dead. It took me years to learn how to use the medicine properly. I use the fentenol patch. And u forget sometimes cause it is always working. Once I left it on while working in my flower garden the next day when I woke up I was a mess. I did not understand that if your body temp. Warms up then the patch will down load all of the medicines at one time!!! Has anyone else out there who had this problem with the patch??? Thanks

Jump to this post

Suebreen I use fentenol and I found out if they get too warm before using them they are useless. I have no experience with them unloading meds too soon in heat. That sounds dangerous they should warn you about it. 19lin<br />
<br />
<br />
<br />
<br />
<br />
<br />
Sent from Windows Mail

REPLY
briansr | @briansr | May 7, 2016
In reply to @sharonmay7 "Suebreen hi I'm sharonmay7. I totally agree with you!!!! I have been with my pain dr...." + (show)
@sharonmay7

Suebreen hi I'm sharonmay7. I totally agree with you!!!! I have been with my pain dr. For 20+years. And the only time he gives me a hard Time is if he finds other meds in you pee sample. I've taken a different pain pill a few times cause I was not home and was having a hard time. But like he said you should ALWAYS be aware what u put in your system!!! A different drug could up set your balance. That is how people end up dead. It took me years to learn how to use the medicine properly. I use the fentenol patch. And u forget sometimes cause it is always working. Once I left it on while working in my flower garden the next day when I woke up I was a mess. I did not understand that if your body temp. Warms up then the patch will down load all of the medicines at one time!!! Has anyone else out there who had this problem with the patch??? Thanks

Jump to this post

What you say is true. Read the insert inside each box and it describes the<br />
dos & don'ts and excessive heat external, heating pad etc, and external,<br />
fever, hot tub, working hard. On and on. Personally I don't think it will<br />
kill you but I AM NOT A DOCTER!!<br />

REPLY
mojoearle | @mojoearle | May 13, 2016

Hello group! I'm almost 34 years old and suffer from Chronic pain. I have had 16 surgeries and have been a patient at the Mayo Clinic in Scottsdale for almost 3 years now but I live in Idaho and have to travel down to Arizona every three months for a month or so of treatment and testing and Doctor appointments and just even thinking of packing and flying down makes me hurt even more. But in all seriousness I do struggle with the long trip down to Scottsdale and then making it to all of my appointments and giving hundreds of vials of blood and doing all the test and my existence is just painful all the time 24/7! I have a pain Doctor in Boise but they make everyone at their clinic only take extremely low doses of pain medication a day and DONT GET ME WRONG I WOULD KILL TO NEVER HAVE TO EVEN LOOK AT A NARCOTIC PAINKILLER AGAIN BUT I DONT EVEN GET TO A 5-6 ON THE PAIN SCALE!

REPLY
8 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | May 14, 2016
In reply to @mojoearle "Hello group! I'm almost 34 years old and suffer from Chronic pain. I have had 16..." + (show)
@mojoearle

Hello group! I'm almost 34 years old and suffer from Chronic pain. I have had 16 surgeries and have been a patient at the Mayo Clinic in Scottsdale for almost 3 years now but I live in Idaho and have to travel down to Arizona every three months for a month or so of treatment and testing and Doctor appointments and just even thinking of packing and flying down makes me hurt even more. But in all seriousness I do struggle with the long trip down to Scottsdale and then making it to all of my appointments and giving hundreds of vials of blood and doing all the test and my existence is just painful all the time 24/7! I have a pain Doctor in Boise but they make everyone at their clinic only take extremely low doses of pain medication a day and DONT GET ME WRONG I WOULD KILL TO NEVER HAVE TO EVEN LOOK AT A NARCOTIC PAINKILLER AGAIN BUT I DONT EVEN GET TO A 5-6 ON THE PAIN SCALE!

Jump to this post

Hi @mojoearle, I'm sure @briansr @19lin @sharonmay7 will join me in welcoming you to the Chronic Pain group

REPLY
briansr | @briansr | May 14, 2016
In reply to @mojoearle "Hello group! I'm almost 34 years old and suffer from Chronic pain. I have had 16..." + (show)
@mojoearle

Hello group! I'm almost 34 years old and suffer from Chronic pain. I have had 16 surgeries and have been a patient at the Mayo Clinic in Scottsdale for almost 3 years now but I live in Idaho and have to travel down to Arizona every three months for a month or so of treatment and testing and Doctor appointments and just even thinking of packing and flying down makes me hurt even more. But in all seriousness I do struggle with the long trip down to Scottsdale and then making it to all of my appointments and giving hundreds of vials of blood and doing all the test and my existence is just painful all the time 24/7! I have a pain Doctor in Boise but they make everyone at their clinic only take extremely low doses of pain medication a day and DONT GET ME WRONG I WOULD KILL TO NEVER HAVE TO EVEN LOOK AT A NARCOTIC PAINKILLER AGAIN BUT I DONT EVEN GET TO A 5-6 ON THE PAIN SCALE!

Jump to this post

This is briansr and would gladly welcome you. Mojoearle mojoearle

REPLY
sharonmay7 | @sharonmay7 | May 15, 2016
In reply to @mojoearle "Hello group! I'm almost 34 years old and suffer from Chronic pain. I have had 16..." + (show)
@mojoearle

Hello group! I'm almost 34 years old and suffer from Chronic pain. I have had 16 surgeries and have been a patient at the Mayo Clinic in Scottsdale for almost 3 years now but I live in Idaho and have to travel down to Arizona every three months for a month or so of treatment and testing and Doctor appointments and just even thinking of packing and flying down makes me hurt even more. But in all seriousness I do struggle with the long trip down to Scottsdale and then making it to all of my appointments and giving hundreds of vials of blood and doing all the test and my existence is just painful all the time 24/7! I have a pain Doctor in Boise but they make everyone at their clinic only take extremely low doses of pain medication a day and DONT GET ME WRONG I WOULD KILL TO NEVER HAVE TO EVEN LOOK AT A NARCOTIC PAINKILLER AGAIN BUT I DONT EVEN GET TO A 5-6 ON THE PAIN SCALE!

Jump to this post

Welcome mojoearl! Jump on anytime one of us is usely up. When in pain as u know some nights are long. Sharon

REPLY
sharonmay7 | @sharonmay7 | May 15, 2016
In reply to @19lin "I am lucky my doctor seems strick but fair he keeps a close eye on me..." + (show)
@19lin

I am lucky my doctor seems strick but fair he keeps a close eye on me and has me consider the disadvantages as well as advantages of the meds. But he works in a clinic run by the Catholics and they can force him to make changes. I have read of others who said either their insurance or the doctor made them stop. From what I have read this is bad news, not only for pain suffers, but for everyone. Already I have read about people going to the black market for pain medicine and dying because the drugs were bad. Also studies in pain research show that chronic pain suffers have a higher suicide rate than average. If saving lives is the goal this is not the way to do it. 19lin<br />
<br />
<br />
<br />
<br />
<br />
<br />
Sent from Windows Mail

Jump to this post

19ln,u are so right! I know a lady now who is going black market. I worry about her. I tried to talk to her a bout it but......she has so much pain but that is not the way to go!!!! I only ser bad days ahead of her.she is in my prayers thats all i can do. If the govmerent has there way we may all feel that way.. Sharonmay7

REPLY
janneg | @janneg | May 17, 2016
In reply to @19lin "I am lucky my doctor seems strick but fair he keeps a close eye on me..." + (show)
@19lin

I am lucky my doctor seems strick but fair he keeps a close eye on me and has me consider the disadvantages as well as advantages of the meds. But he works in a clinic run by the Catholics and they can force him to make changes. I have read of others who said either their insurance or the doctor made them stop. From what I have read this is bad news, not only for pain suffers, but for everyone. Already I have read about people going to the black market for pain medicine and dying because the drugs were bad. Also studies in pain research show that chronic pain suffers have a higher suicide rate than average. If saving lives is the goal this is not the way to do it. 19lin<br />
<br />
<br />
<br />
<br />
<br />
<br />
Sent from Windows Mail

Jump to this post

She should get some natural grown POT, make brownies or candy and use that. Better for her probably than the<br>black market street drugs or the ones the drug dealing doctors give you (some of them) You want to help her so<br>badly-make her a batch.

REPLY
View MoreView Less
Please sign in or register to post a reply.