Chronic Pain members - Welcome, please introduce yourself

Brainsr you are right to many are making it hard for those with real pain, that is why I lobby for research to develop an approved objective measure for pain. Such a devise should so who has real pain and who is faking. Of course it will not be easy but it needs to be done for everyone’s benefit. Too many good people are suffering needlessly because of a few who are trying to get rich quick. <br />
<br />
I am sure you have tried many alternative pain control methods as have I, most are not effective but you need to try. I still have not tried hypnosis to see if that would work. At Mayo’s a few years ago they tried ECT on me and it did stop my phantom pain for awhile, but not the sciatic nerve pain. I tried it a few times but it had some negative side effects so I stopped it. Some find acupressure helpful.<br />
<br />
There is a good article in the June issue of Consumer Reports on pain and the methods used to stop pain. It just came out so you can probably find it at your library. They review the various pain treatment methods and how effective they have been found to be. Good Luck 19lin<br />
<br />
<br />
<br />
<br />
<br />
<br />
Sent from Windows Mail

To sharonmay7 . with the strength of the meds your taking, stopping<br />
suddenly would make you so sick you do not want to go through that ever. I<br />
have many times and it took me to the floor.<br />

Thank you for your support. It warms my heart that people care. I am 55 years old and I would like to be able to do things for 10 - 15 years more even if I have to sit in a wheelchair. I am quite capable of doing and solving things so I think I will find a way forward. But I struggle a lot with my self-worth as I was raised to take care of my siblings and when I needed help from them they was not able to help me. I know that I have to take better care of myself, eat better and a lot of other things but I feel so guilty when I do things for myself.

I have two small parrots, Lovebirds, and they mean everything to me as they are my children right now. They are very important to my mental health and I take them with me when I move but some people think I am crazy for loving them so much and it is quite costly to get them with me. But the same people wouldn’t question if it was a dog. It makes me feel guilty but at the same time I know that I wouldn’t go without them.

I just came back from a hospital where I have spent the night for a sleep study. I have no idea of the result, all I know is that I was awake until 4 am and still need more sleep.

I struggle a lot with my diseases, some weeks are so bad so everything is pain and the only thing to do is to rest. I have to go and shop myself and for every day out I need at least 2 – 3 days rest. The problem is that the big pain does not come right away; it comes after 20 – 30 minutes and then is too late to do something about it. Worst is when the hip is aching because then it get so hard to walk. The hips are x-rayed and the joints seem to be ok, it is the fibromyalgia in the big leg muscle that is giving me the pain.

Even when I have all this pain I think it is important to focus on something else than my pain. I don’t want to sit and feel sorry about myself all the time. I am educated about child abuse and have worked with it in the past. Then I also voluntarily worked with abuse against men and from men. It is my goal to be able to go around and talk about abuse against men as I have knowledge and experience about it that can be important to share. In Sweden I was doing research about bullying about 20 years ago and when I left there has not been any more research done. And it is much needed. But first I have to find ways to take care of and improve myself.

Brainier. That dosnt sound like fun. And I hope that never happens to me!!!! But like some Hav said,it can happen. I hope the government gets there shit together. Without meds I would spend most of my life in bed!!! It is so hard to Hav others do for me, when I was always the one doing for others! This is the hardest thing for me to deal with! Hope this finds u on a good day. Yours Sharonmay7 <br />
<br />

I agree if we could get off some of the pain pills and b able to replace them with that, would b nice!! Anything with out side affects would b nice to try!! I think some people who Hav never had pain thinks we r fracking it!!!! Or we just can't handle pain!!! But of course that is not true. I've been afraid to ask my pain dr. About it. Sharonmay7<br />
<br />

Thank you sharonmay7. Have to see my GP today and we're going to have a<br />
talk. I'm real tired of this 2 to 3 hrs of sleep a night. I understand how<br />
you feel. My spine has been crumbling for 33 yrs an is in my thoratic<br />
region. Pretty soon everything will meet together around T-7. I used to<br />
go fishing and camping every year but it's been 4 yrs since I've been<br />
fishing and around 15 yrs since camping. I miss those. My wife walked out<br />
on me 4 yrs ago after 37 yrs for a new guy that can get around better. That<br />
one still hurts but now her back is all messed up. So now she gets to<br />
visit my world LOL!!! We still get along great and talk alot. I'm only 60<br />
and would love just have some companionship by someone who understands me.<br />
Maybe we need to set up a Chronic Pain Dating Site? Call it Park Bench<br />
Dating, the dating site for people in chronic pain and meet at parks just<br />
to sit because that's about all most of us can do.....LOL Have a good day<br />
and let's all say a prayer for our group!!!!<br />

I can empathize. To look at me I look pretty normal except for a cane. But<br />
inside my body is screaming. briansr<br />

Yes the know what you mean<br />
I have been having a hard week, and also have to take care of my mom who<br />
has Alzheimer's, and RA. My sister came directly from Texas, and Four of my<br />
five brothers. I had them all come to see what I have to do for her and to<br />
understand how much I needed there help and support, especially when I'm<br />
when we I'm having flair ups. Just because I have learned to live with my<br />
pain and discomfort with walking and getting up don't mean there's no<br />
suffering going on. They seemed to understand and said they would help me,<br />
and try to understand that see don't mean to be so unkind, she thinks we<br />
are trying to take her freedom, she thinks she's bath and it's hard to make<br />
her understand. Everyone one of us has to understand she remember, are use<br />
her mind like she us to. I know I have a problem that might one day cause<br />
me to never walk again. So, because I look alright when they see me they<br />
think I'm fine, now my sister has seen me on my worst, so she understands.<br />
I pray every day but know my bodies wore out but let me keep my right mind.<br />
Our good Lord has keep my. I still work with my husband in the ministry and<br />
do my counciling. But, if the pain is in unbearable I stay in bed, where my<br />
husband put shelves for my books and chairs and a tv-vcr so my six<br />
grandchildren stay with me and watch cartoons are a princes movie. And if<br />
Miss church my pastor records the services account I get to hear. I'm lucky<br />
so far, I haven't had to be on antidepressants, sometimes it feels like I<br />
could be, I just call for my grandkids and it seems to work. I hope All of<br />
our friends that are on this site stay strong and courageous on these<br />
journeys we are on and I pray that we all have peace of mind and that we<br />
can minister to others by our experiences. Love an Prayers salena54<br />
<br />
salena<br />

Selna I can emphasis with your situation. My father had Alzheimers and I have no brothers or sisters plus my Mom passed a few years before from Cancer. Luckily my wife was willing to help. My Dad was not as bad as it could have been, he stayed mobile and able to care for most of his body functions , unlike his sister who was in a nursing home the last few years of her life with Alzheimer’s. I was able to hire people to stay with Dad when one of us could not be there. Also, for good or bad, I was diagnosis with fibromyalgia a year or so before and was able to file for disability retirement from my job so I had time free to help him. If you can set up with a local group of support for Alzheimer's families that help find patient sitters to relieve you when you need it. Check on the internet for other support.<br />
<br />
Now the bad news I heard on the new that the feds are requiring all doctors who give opioids to take special training course to use those meds. This is just going to make it harder for all of us. Any day I expect to hear from my Doc that he will no longer be able to prescribe meds either because of fed regulations or his clinic’s refusal to give them out. Good luck 19lin

Thank lin19 for your help. I will look into the group for Alzheimer's. I'm<br />
so sorry for your loss. I lost my dad to heart disease, he had heart<br />
surgery and never recovered. That was 15 years ago and I said miss him, he<br />
was my best friend. I have a sister-in-law with fibromyalgia and see how<br />
she suffers from pain and depression. When I was diagnosed with Lupus my<br />
Doctor gave me a lot of information to study and my husband and call to<br />
study, fibromyalgia is a cousin to lupus. They don't understand these<br />
diseases, they are called diseases because there is no known cures for it.<br />
Know they do have better treatment and it's no longer a death sentence as<br />
long as you take care of yourself and keep a positive attitude. It's a hard<br />
disease to find, you almost have to be in a flair up for it to be found.<br />
Thank you for posting me back and have a blessed day.<br />
<br />
salena<br />