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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 19 hours ago | Replies (6907)

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@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Replies to "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..."

Hi ..... yes, I "think" I could tell the weather with the first TKR but it's hard to tell because it hurt anyhow. I live in the very western part of Virginia, right below the Blue Ridge Parkway. I don't think they know what we're going to get .... some say 8" and some say 12" .... with all their fancy equipment I guess it's hard to know if the mountains will "protect" us or if it'll come right over and make a huge "deposit" on Harrisonburg.
I'd LOVE to go to FL.
abby

Both of you try marijuana thc 70%<br>

I have keloid scaring and that makes joint replacement questionable. With my kind of scarring the scars build up in in big red lumpy , itchy areas. Does anyone here have that kind of scarring if so have you had a joint replacement?

Hi Pablo! I'm new here and to your well-rounded vintage, must seem an eager pup. I had to reply as I, myself, have posed this question to both my neurologist and an incredible primary care physician.
You see, my condition is Multiple Sclerosis. I was treated with a monthly infusion called Tysabri for nearly five years. It lowered my immune system to the point of non-existence. It also called for me to remain out of direct sunlight and My neurologist was of the antiquated school of thought that elevating my core body temperature by a mere 3° would cause my already feeble immune system to flare up, causing further disability.
I, was instructed, however, to move and exercise. Living in Kansas, with extreme swings in weather patters in any given day, let alone week, I posed this question . What I was told is that this distraction or "mind control" as you put it, can indeed be dangerous for it is just that...a distraction, while the body is still engaged in activity. It is the reason why people listen to music and watch television while on the treadmill. To make the time "fly" by distracting a different part of the brain. It is also why a pot of water will never boil when we watch it. It is not because the time is moving at any different rate of speed, but because we are engaged in a pleasant activity.
When our bodies become fragile, we have to take extra good care of them. We have to use sunscreen, drink lots of water, and even use an ice vest during hot humid weather.
I do hope this helps.

Hi @akasha92,
I'd like to invite you participate in the Multiple Sclerosis (MS) discussion group here:

- Multiple Sclerosis (MS) - please introduce yourself http://mayocl.in/2eKI4Kj

Hi. My name is Barb and I have chronic intercostal nerve pain from a thoracotomy for lung cancer in 2007. My pain got worse in 2013 after my 2nd radio frequency ablation. It now wraps around my whole ribcage and into upper abdomen. I've tried everything including 2 different spinal cord stimulators. I saw my pain doc last Friday about options as the new stimulator is not helping much. He has no other options for me. I have decided to try CBD (hemp) Oil. Praying it helps.

Hi @barbvh!!
You just gave me chills and flashbacks from my own experience with costochondral contrite us and intercostal pain!!! Took years for me to finally be pain free. I would like to give you some hope!!!

As in a car accident in 1999 I broke my sternum through my sternomanubrial joint they removed half my sternum and my third fourth and fifth ribs are floating and I have irreversible damage to the nerves along with many other injuries. I saw 27 surgeons who all told me "sternal fracture is always heal I needed to give them time and be patient!!!"

I am not a patient person so I went to Mayo Clinic in Rochester Minnesota on standby and waited until I could get seen. This was the best decision I have ever made!!!

Here is a link on treatments.
http://www.mayoclinic.org/diseases-conditions/costochondritis/basics/treatment/con-20024454
Can you share some of the treatments you have had in the past?? Physical therapy? Aqua therapy? Biofeedback?

Medications I 100% wholeheartedly encourage every person to have genetic testing done before prescribing or taking any new pain medications. Every person's DNA make up is different and not all meds are made for every patient this is why some people have better response to meds versus others. By having PGX (pharmacogenetic) testing done ahead of time doctors are able to prescribe the right pain medication, at the right dose, at the right time a day, to treat your symptoms without all the nasty side effects and wasted money.

http://mayoresearch.mayo.edu/center-for-individualized-medicine/pharmacogenomics.asp

Looking forward to learning more about you!!
Dawn

@barbvh Hi Barb. I hope it give you some relief also, no one should have to live with constant pain like that.
I presume hemp oil has the same effect as smoking marijuana? I never knew it came in oil form. My PCP is so straight that if I ever asked him for marijuana he would probably keel over, even though it is legal here.
Good luck with this and let us know if it has helped.
JK

Thank you, I found that this has been an individual path. I am still trying to accept how lonely that is.

I am sorry for your suffering. I didn't know that nerves grow back that is interesting. I have a body corsett or cast that chinches me in all the way up to my armpits. I was going to have another fusion since the initial one failed to fuse. Maybe wearing it could help. I had the cast made but then saw another surgeon who strongly suggested not to do it and live with the pain since thoracic surgery is so dangerous. Living with this has proved to be very challenging and disheartening at times but I like your attitude and wish for you, good days ahead.
Sincerely,
Kristine