← Return to Interested in how other caregivers survive

Discussion

Interested in how other caregivers survive

Caregivers | Last Active: Apr 28 9:40pm | Replies (96)

Comment receiving replies
@rocketmom

I’m new to forum. Caregiver 24/7 for friend with Parkinson’s. He constantly wets his pull-ups and his brain cannot hold back after the he urge hits.

Knowing it’s the brain. I remind him with assistance to take quick shower. In addition, I set an alarm every 2 hrs during the day prior to 7:00pm for him to urinate.
That’s all we can do.
I also reach out and have maid service monthly to scrub bathrooms etc.
as caregiver I made stipulations whether married or Friends:
1. Put in assisted living facility; or
2. I receive a small amount of cash if the house is used to pay for assisted living.
In addition, I make the house as it’s my house to decorate. Married or not.
Last but least, I have joined activity groups like wine tours of gardens, kayak paddler beginners, and computer security groups who meet monthly.

In order to decrease the mortality rate of caregivers, it is necessary to “pay for sitters” to get away rather than “control” everything!
We need our own time and BOT be isolated!

Jump to this post


Replies to "I’m new to forum. Caregiver 24/7 for friend with Parkinson’s. He constantly wets his pull-ups and..."

@rocketmom I like your idea of being paid for your work. Think of the hundreds of unpaid caregivers! I have a friend who is paid by a county agency to provide 24/7 care for a man with Parkinson’s.
How do people react when you tell them of pay requirement and home decorating?

@rocketmom, you may also wish to join other caregivers as well as patients living with PD in this support group:
- Parkinson's Disease Support Group https://connect.mayoclinic.org/group/parkinsons-disease/