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Just found out I have prostate cancer...

Prostate Cancer | Last Active: Oct 6, 2023 | Replies (53)

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@bens1

Jeb0505: you might want to use your biopsy material for a decipher test. At the minimum, it will give you a back up opinion that is not based on an image. It will let you know, based on its comparison, to similar biopsies, the aggressiveness level of your cancer, and it will suggest how many modes of treatment to consider. Doctors do use this test and based on this test they may reevaluate what treatments they would suggest for you.

My mridian 5 hypo-fractional treatments ended in February. My worst Gleason was 3+4. I felt that everybody was physically different, such that growth could not be determined by doctors or by Testing in Ways that would give me an accurate determination as to how long it would take for my cancer to grow outside of the Prostate, if it ever did. I was not willing to take the chance that it grew out of the Prostate, where additional treatments could possibly and dramatically change my quality of life.

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Thank you for your reply. I also read your thread about MRIdian therapy. Very helpful (despite it not being available in AZ).

bens1: Jeb0505, I completely agree with getting Decipher test. They use the biopsies already taken. My original diagnosis was intermediate and Decipher came back low risk of metastasizing. The only thing it changed in treatment was that hormone treatments would not be a recommended or needed treatment in addition to radiation treatment.

I think all the test you can get to get the most accurate diagnosis is worth it and will help with treatment plan decisions.