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Recurring severe mouth ulcers and MGUS
Hi there, diagnosed with MGUS a couple of years ago. I get recurring, multiple and severe mouth ulcers. Due for a follow-up with haematologist end -Oct but in desperation saw a new GP who (surprisingly knew exactly what MGUS is) believes there's causation between MGUS and the ulcers (deficient immune response). To be honest I was quite relieved that there was some explanation!! The current bout of ulcers has lasted 5weeks and counting.... Am awaiting GP-requested blood test results to check zinc, vit b, magnesium, iron etc. Also feel fatigued during these outbreaks. Anyone else experienced this?
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I’ve never heard of MGUS but search for “Behçet’s” (beh-chetz{sounds like Chet Atkins}). Also, it wouldn’t hurt to have a dermatologist look at your mouth.
@djm123, you may be interested in these related discussions to help manage the painful mouth sores.
- Mouth Sores from chemo: When do they go away?
https://connect.mayoclinic.org/discussion/mouth-sores/
- Anyone else dealing with painful mouth sores and burning mouth
https://connect.mayoclinic.org/discussion/anyone-else-dealing-with-painful-mouth-sores-and-burning-mouth/
- Sores in mouth
https://connect.mayoclinic.org/discussion/sores-in-mouth/
@nancy1900 @gingerw may have experiences to share.
@djm123, did you learn anything from the blood tests?
I too have MGUS diagnosed about 7 years ago. Canker sore started about 1 year ago. Come & go, last 3-5 weeks, good for about 2-3 months, then back again. Didn’t mention it at last visit with Hemotologist as didn’t occur to me they would be because of MGUS. But since they keep recurring did some research and have found it can be a sign. So, no help to you other than to let you know you aren’t alone. Hope we all get some results as they are painful and annoying. Good luck.
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2 ReactionsYes I have MGUS and recurring mouth sores. Not as often now. A month ago was the last time that I had to take medicine. My primary care doc sent me to a breast cancer oncologist/ hematologist for my MGUS care. He has retired now. So I don’t know what I should do.
MGUS can be associated with autoimmune diseases, such as lupus, and it would be reasonable to be checked for the auto immune diseases that can cause mouth or nasal ulcers. Oral ulcers can be quite painful and it helps when present to avoid acidic and spicy foods such as tomatoes, citrus fruits, acidic, salad dressing, with vinegar, etc. There’s also products that can be applied to the sores like viscous lidocaine or Oragel that temporarily numb the ulcers. I hope you get some answers to your question and some relief when the ulcers occur.