Talking to paranoid Mom's Dr with her present...

Posted by anotheranonymous @anotheranonymous, Sep 18, 2023

My mom is not diagnosed, but I have no doubt she's in the early stages of dementia (or something with similar symptoms). I moved her in with me because her former neighbor told me he caught her climbing off her roof, alone, onto a precariously placed ladder, because she was looking for a recording device that some homeless people had placed up there to spy on her. It has been a few months, and now she's looking to move several hours away. I feel like I have a small window of opportunity here to get her to agree to receiving help before she's too far gone and causing big problems. The problem is, she's in complete denial - or can't recognize that anything is wrong.

The last time she went to a doctor's appointment, I said I would appreciate it if she talked to him about a cognitive assessment. This was met with anger, frustration, paranoia, and cruel accusations (which is, sadly, becoming quite common). When she got back from her appointment, she said the doctor had given her a test "and there's nothing wrong with me", and he asked me to come to her next appointment - I assumed to discuss alleged cognitive symptoms. The following day (which is important because she often has nighttime hallucinations that she thinks really happened) she told me that she mentioned a financial stressor, then the doctor suggested that might disqualify her from Medicaid and that she should consider getting a lawyer. This stressed her immensely and she didn't want to go back - mentioning that she might get arrested if she did. Later, when I brought up making the followup appointment, she talked her way out of it in every way that she could - it was only to check her medication and she felt that was fine; it was only to talk about her stress, but she's not stressed any more, etc. I had to stick to the idea that I was concerned about the idea of losing Medicaid and wanted to get that straightened out. As she got more upset and flustered, she said "is this just because you want me to take the longer test?" I'm assuming that's a more-in-depth cognitive assessment that I hadn't known about. That's what makes me think there's more to my being invited to this appointment than the doctor inquiring about household finances. She eventually, very angrily, scheduled the appointment.

My question is, how am I supposed to discuss her symptoms with her doctor, with her present, without causing stress/problems? She used to ask me to point out symptoms I noticed, because Alzheimer's runs in the family, but when I started to, she would blow it off and then start hiding those behaviors from me. She also had a dream/hallucination (that she thought was real) in which I yelled at her for many of her symptoms, she said "it was crushing to hear", then thought I was going to sue her for it. And like I said earlier, she often gets extremely upset and defensive. Now I'm going to team up with her doctor, right in front of her, and say all those "crushing" things that she doesn't believe are true. However, I feel like it's my only chance to escalate myself to the level of caretaker - if her doctor facilitates it. I can't talk to him in private if she doesn't sign the proper forms, and she won't sign them if she thinks nothing is wrong. I know I can't force things to go my way, but I feel like I at least have to try right now, before she moves away and falls off her roof or something. Any recommendations, suggestions, ideas, or commiseration would be appreciated. Thanks.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

To finish what I started writing.... our MY CHART communication method works well and also allows you to send messages to you doctor... which do get answered BY THE DOCTOR!

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@slysi

To finish what I started writing.... our MY CHART communication method works well and also allows you to send messages to you doctor... which do get answered BY THE DOCTOR!

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For some reason my comment got tossed ???? Anyway , we patients or caregivers ( family) are the reasons Doctors get paid aren’t we ? So if we aren’t peaty or too long winded why shouldn’t they talk to us ??? The nurses ( or lawyers) should see to it that we can communicate with our doctors !

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@scolio

Can you mail a letter to the doctor?

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Hi, yes, your mom is very fortunate to have you. I hope with these ideas you can reach your moms doctor. I am in a similar position, but was able to email my moms Dr via email. Take care!

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Hi, I am new to this group. My mom was recently diagnosed with “short term memory loss”. However, her Dr is unwilling to pursue any of the neurological testing for dementia because he said there really isn’t any medication to help her. Her father had dementia. Do I insist on more testing or just let it go? Can you share some of the benefits to having an official diagnoses? Thanks everyone! Hope you have a good day.

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@anotheranonymous

Apparently the only thing I can do is leave a message with a receptionist over the phone that will then be relayed to the doctor. So far I've had mixed results with people and am not very confident with that system.

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I suspect that the doctor already has some clue. Either way, with a diagnosis or not, the next several years are going to be difficult, for you and your mom both. There is lots of good information here, from people who are in similar situations. Unfortunately, it's not so rare.

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@coffee77

Hi, I am new to this group. My mom was recently diagnosed with “short term memory loss”. However, her Dr is unwilling to pursue any of the neurological testing for dementia because he said there really isn’t any medication to help her. Her father had dementia. Do I insist on more testing or just let it go? Can you share some of the benefits to having an official diagnoses? Thanks everyone! Hope you have a good day.

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@coffee77 Welcome to Mayo Clinic Connect. I can see from your profile that you are new to the Caregivers Support group but not to Mayo.
https://time.com/3755176/doctors-diagnose-alzheimers-dont-tell/# This is an excellent article about why doctors won’t diagnose.
Here is an article from the Alzheimer’s Assoc. On benefits of diagnosis.
https://alzheimer.ca/en/about-dementia/do-i-have-dementia/how-get-tested-dementia-tips-individuals-families-friends/10#:~:text=People%20with%20dementia%20can%20live,plan%20for%20their%20future%20together.
One article suggest that you find a geriatrician (a doctor who specializes in treating the elderly) and you might have more luck.
Would a diagnosis make a difference in how you care for your mother?

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@colleenyoung

@anotheranonymous, I thought I would check in with you. Your mother is lucky to have your care, although she may not be able to express her gratitude. Your situation is a challenging one. But as you can see, you are not alone and several members have already shared similar experiences and offered ideas of how to discuss with your mom's doctor about her increasingly paranoid behaviors and cognitive issues.

Have you since been able to email or schedule an appointment with your mom's doctor with and without your mom? How are YOU doing?

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I would have the doctor call me to discuss your concerns.

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@becsbuddy

@coffee77 Welcome to Mayo Clinic Connect. I can see from your profile that you are new to the Caregivers Support group but not to Mayo.
https://time.com/3755176/doctors-diagnose-alzheimers-dont-tell/# This is an excellent article about why doctors won’t diagnose.
Here is an article from the Alzheimer’s Assoc. On benefits of diagnosis.
https://alzheimer.ca/en/about-dementia/do-i-have-dementia/how-get-tested-dementia-tips-individuals-families-friends/10#:~:text=People%20with%20dementia%20can%20live,plan%20for%20their%20future%20together.
One article suggest that you find a geriatrician (a doctor who specializes in treating the elderly) and you might have more luck.
Would a diagnosis make a difference in how you care for your mother?

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Thank you very much for sending me these articles to read. They are very interesting. I think my dad and I both want to know a diagnosis, so we know what to expect and can help her in the future.

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