Pain And Changes In Weather...Am I Alone????

They don't know for sure what it is at this point. Many rheumatologistsincluding some in the US where my imaging was sent have at this point diagnosed it as SAPHO as well as fibromyalgia in my back dorsal muscles and other parts of my body but its the back muscles and pressure on the back vertebrae facets that are causing me the most pain. If its intense it sometimes makes my back muscles spasm getting in bed or if I jolt or get an unexpected shock watching TV which is quite excruciating. It was initially thought to be Anklosing Spondylitis but I don't really have all symptoms relating to either AS or SAPHO.

My spinal vertebraes are eroding and T12 has collapsed 80 percent which is causing stress on my upper back vertebraes and causing kyphosis.

The orthopedic surgeon I am seeing believes he can help me by doing a vertebrectomy, cage installation and fusion.

I am considering doing the surgery in the Fall. Since it's akin to a truck hitting you ( my surgeon's words) and will require close to 2 months recovery and rehabilitation, I want to get a few of my affairs in order beforehand and would like to get a little sunshine before being inside for months on end again.

Fortunately I don't have any pinched nerves. Am sorry to hear of your pain.

It's so debilitating. Unless you're going through it or have gone through it, it's difficult for people to understand.

Wishing you a good weekend and less pain.

Yes!! In my area when the pressure gets below 30.00, the pain. is terrible. Usually it goes down before it rains or a cloudy day. I have been checking it every morning. It’s really bad today.

Good evening @kaca22. You have described the barometric pressure "attack" very well. I seem to be aware of changes before the weather folks mention it. And I am also wondering if there are some changes when the barometric pressure begins to go back up to 30.00 and above. In Minnesota, the storms are pretty strong and I struggle, especially when they last longer than a day or so. Do you know if anything helps? Medication? Beverage? Exercise?

May you be free of suffering and the causes of suffering.
Chris

Im in UK & Yes the weather dictates know when it's cold before its cold & visa versa . Rain well that's another thing swelling pain come & feel heavy like the clouds around my head .Summer is a miracle for me 😊

I experienced more pain when the whether is changing . I have back pain and have to wear a brace

Chris, I don’t know of anything that helps. I just keep on keeping on. Walking and sunshine seems to help me. Of course you can’t always get out to walk or enjoy the sunshine.

When I lived in Minnesota, I always was able to feel weather changes coming, the pain was very clear. Now living in the deep south of Florida, I do not experience pain from weather changes, but changes in humidity seem to do the trick here.

I have a question for you? I am looking all over for a dr. Because I don’t feel healthy all together. I know that I have fibromyalgia, but I don’t remember when I was diagnosed with that pretty sure it was at least 7 or eight years ago, but I’m not sure because I have memory loss. When I was 27 years old, I had an 11-year-old daughter and a two month old son and I had a hormonal brain tumor due to as I remember.
I ended up having multiple strokes on both sides of the brain. So my 11 year old had to re-teach me how to be an adult so I was a baby all over again in my 11 year old had to teach me everything that’s what I remember so being trapped in your brain is not a good feeling, so I know how it feels to be trapped in your brain so I know what it’s like to have strokes. I was legit, trapped in my mind. People were talking to me and I was trying to talk back and I couldn’t in my life basically ended, but started. My life ended as a career woman , a single mom with an 11 year old and a two month old and my life started as a 27 year old mom disabled can’t work anymore for the rest of your life with an 11 year old and a two month year old. My life has been unhealthy ever cents. They had to give me steroids to open up the blood vessels in my brain which caused deterioration of the bones which cause me to end up having hip replacements so both of my hips are replaced and I have chronic back pain to the point that now I even have a back stimulator, and that’s not even helping. I don’t want to take opiates or medical marijuana. And even when I do take them, my pain doesn’t even touch it it’s like I took a TicTac, so what’s the point in taking it? I have always had IBS of constipation and diarrhea so I have never had a normal bowel. So I also have that issue and I’ve had the gastric sleeve and I have rib pain that it’s unexplained and doctors just don’t know what to do. And I just went to my primary doctor for a well check and the doctor told me I’m sorry you’ve been dealing with this for 17 years. I don’t want to touch anything anymore you’re just going to have to go to the mayo clinic and we all know I’m never going to get in there because there is no house anymore or Doogie Howser because nobody wants to search or look into what’s going on or what diseases could be or why am I so sick or do I really have kidney disease or liver disease or what’s going on and girl we’re going to have one heck of a storm today because my kneecap just felt like it was going to shatter. I don’t know where.

I can feel for anyone with this curse. I can predict rain, thunderstorms, and usually the intensity of both 3 to 4 days out from the event. Crazy as it may seem, in most cases, I am more accurate than the weather bureau. The pain is worse in my hands and my legs. I have had this much-hated talent for as long as I can remember. I have tried everything and nothing makes a difference. When traveling, (I have a lot) into say the Amazon I have no issues as the barometric pressure doesn't change much. It is far worse in spring/summer. Funny enough my chiropractor would call me to work out if it would rain so he knew if his son would play sport on that weekend. Regardless of what some so-called experts may say, we know our bodies better than anyone. If anyone finds a solution I would love to know. It is no fun I can assure you. Painkillers are the only management tool to live a normal life at times.

My husband is the same way with his NDPH (New Daily Persistent Headache, 24/7 head pain). He can feel a storm coming in 3 - 4 days before the event too. I wish there was something to block the effects of barometric pressure changes.