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Horrible abdominal Pain- all tests say I am fine but I am not
Chronic Pain | Last Active: Jul 4 2:08pm | Replies (94)Comment receiving replies
I started having Gastrointestinal issues in 2018 out of nowhere. I was a healthy kid and up to that point a healthy teenager. I had no issues with different foods and my food options consisted of a variety of foods with no restrictions. My parents loved to cook so we rarely ate out or had processed foods. But in 2018 that all changed and I started experiencing severe abdominal pain and bloating after eating food along with constipation. My bloating was so painful I looked 5 months pregnant and it normally would occur within 30 minutes to an hour. I have seen 3 gastroenterologists (2 pediatric gastroenterologists and 1 adult gastroenterologist) and have had a colonoscopy, endoscopy, been tested for celiac disease, SIBO, and had negative exams for Crohns and ulcerative colitis, I’ve had a lot of blood work, CT scans and X-rays (to monitor constipation) and everything has come back normal or negative. I’ve eliminated dairy and have maintained a FODMAP diet for two years now because dairy and FODMAP foods make it worse but even “safe foods” from the low FODMAP diet are still causing abdominal pain. It’s almost as if my stomach is just sensitive to food all of a sudden and it struggles to digest it. I am at a loss as to what is going on with my gastrointestinal system and after 5 years of dealing with this and being so restricted with food it’s starting to affect my mental well-being because I have no answers and no relief. The only symptom I have been able to “fix” is the constipation but unfortunately because I’m taking Motegrity for it. If anyone knows something that can help or can help guide me. I just want to be normal again and be pain free. I’m desperate for answers.
Replies to "I started having Gastrointestinal issues in 2018 out of nowhere. I was a healthy kid and..."
Where are you from? Florida here. Gallbladder removed 20 yrs ago
@genise22
Checking in- what do you think about our postings to you as well as conversations among others?
3 ER visits in 3 days with severe abdominal pain , shortness of breath, blood in urine back pain
1st visit ct with contrast = 1 kidney stone non obstructing left side should cause no pain go home
Same day back again
2nd visit-ct with contrast= multiple stones both sides and impacted bowel( is this even possible in less than 24 hours??)
Next day university hospital
3rd visit= no idea ??
Next GI visit=“your symptoms are weird”(word for word)
Colonoscopy = diverticulosis and polyp removal (should not have caused pain or obstruction?)
Next visit urologist-
We need to do cystoscope for possibly nothing, renal failure or tumor but can’t do for 3 weeks as we are booked ( really???)
Still having shortness of breath when I do anything physical (as I wait for any diagnosis )bloating and back pain hoping Mayo can help
Has anyone else had issues with shortness of breath for GI or kidney problems
As a lay person having GI issues for many years, I Can only offer my attempts to help. I recently have understood that anxiety does play a part in constipation, so look into that, as I am doing now. I can't imagine, after all those tests and examinations that there is still no diagnosis/prognosis But at the same time, with my experience(s) I understand and believe you. Recently I have turned to....believe it or not: liquid AloeVera. I'm still trying this out, but I can tell you that using it as directed, I am less constipated. Now, as for me, I only stay with one "fix" for about a weeks time, then, for example, I am now using prunes/heated prune juice...for only a weeks time. I fear using anything consistently, the body becomes immune and no longer reacts to that particular aid. But that's just me. Your experience(s) leads me to confirm that the medical people are still in the realm of medicine being an ART, not a SCIENCE. I say that with respect to the industry because our bodies are very complex. So, ANXIETY, and other supplements are my current battle. Booze, drugs will only make life far worse than our GI. I am also taking CHAMOMILLE capsules to relax the gut, Beano, Fodmap, Miralax..etc
DONT help. One more thing is simethecone pills. Again, whatever I take is in MODERATION. There just isn't a "magic bullet". Perhaps over the years, we have depleted the "good bacteria" in our gut, trying to rebuild it isn't easy. Best of luck to you. PS: WALKING after eating seems to help.
Update: put my hopes in Mayo Clinic waited a week for their call only to say they don’t take my insurance and want 5k up front 😔 I’m so exhausted mentally and physically from all this I’ll have to learn to live like this I guess
Have you tried Atrantil?
Also probiotics and kiwi fruit. I try to eat raisin bran every morning.
I don’t know if the FODMAP diet is gluten free, but many people have gluten sensitivity without actual celiac disease. Celiac testing will be negative but a gluten free diet will help prevent the symptoms if you’re sensitive to it. It might be worth a try for a month if you haven’t already done that. That should be enough time to tell you how it is working. I hope you get some answers and relief!
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Where are you from? Florida here.