Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease

My grandma who has been Lou Gehrig’s disease for 2 years at the age of 75 had all her symptoms reversed with a Ayurveda medicine from health natural centre . org after undergoing their ALS natural treatment plan. God Bless all ALS Caregivers. Stay Strong, take small moments throughout the day to thank yourself, to love your self, and pray to whatever faith, star, spiritual force you believe in and ask for strength. I can personally vouch for these remedy but you would probably need to decide what works best for you.

Hello @erichersh and welcome to Mayo Clinic Connect. I wanted to help connect you to other members who are also caregivers going through ALS with a family member so you will notice I have moved your post here:
- Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease: https://connect.mayoclinic.org/discussion/als-2/

Members like @722jo @allegro @julesa @bethclardy22 @laurahquayle11 along with @hopeful33250 may be able to come back in and share about their neurologist.

While we wait for others to come in, I'd thought I'd share more about ALS care at Mayo Clinic if interested:
- Amyotrophic lateral sclerosis (ALS) - Care at Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/amyotrophic-lateral-sclerosis/care-at-mayo-clinic/mac-20354030

Are you set on finding care in a certain part of the country or open to travel anywhere?

I need this too , my husband was just diagnosed 3 weeks ago! We are in Columbus area of Ohio. How do we get another opinion through Mayo?

@amybish ALS is a very difficult diagnosis to get so I understand if you are anxious and devastated. The Mayo Clinic has a Care Network of hospitals, one of which may be in your area. https://mayoclinic.org/about-mayo-clinic/care-network/members
You can also try a university hospital or comprehensive medical center in Ohio.
Let me know if you are able to get an appointment

I thought it was hard, but he was referred to Dr at OSU and they seem to just say it right away. We’re in Ohio also but I just wondered if male clinic in Lake Florida or somewhere might be good place?

@amybish there are 2 hospital in Ohio in the Mayo Clinic network. They are Blanchard Valley Health System and Memorial Health System. I’m not sure what you mean by Lake Florida, but these 2 hospitals would be great to try.
Will you let me know which one you choose?

I meant Jacksonville, Fla
I heard there or Arizona location are best

I am just so curious about his. My Dad passed with ALS when he was only 56. I was a child but I remember how hard it was for my Mom and he died in his bed at home. She was his caregiver and never thought she did enough for him. I miss a great woman to this day; she has been gone for over 35 years. I have a niece that they think she has ALS. They can't find anything else to name that is wrong with her. She has been to 8 neurologists for tests and consultations. She is 68 maybe 69 now and been having symptoms for last 2 to 3 years of weakness and losing mobility. I am going to pass this on to her. Any other thing she did that might be of interest and help to my niece? I really appreciate any advice to pass on. Thank you.

@quimbie, @amybish
The doctors at Mayo Clinic in Jacksonville, Florida, helped us through the ALS ordeal. They also do genetic testing. There is a type of ALS that runs in families. My sister's genetic test showed positive for this gene. We had an uncle that had ALS as well, although we didn't find out until after his death. There are a few approved drugs to treat ALS but they only extend life by a few months. There is no cure. But, Mayo Clinic has an ALS team of doctors, social workers, pulmonologists, physical therapists and other professionals that will help you navigate through the stages of this horrible disease. They were a great resource and also knew what we needed before we needed it. As the caregiver, I think I benefited more from the ALS Clinic than my sister did. Other hospitals are doing this approach as well. I hope you find one in your area. I would have been really lost and clueless as to what I needed for her care as she progressed. I wish you well through this journey. Make the most of every little moment. ALS takes away all of the person's physical abilities, but it does not take away the mind. That is the hardest and also the best part. My sister couldn't do things anymore, but we found ways around her limitations. We still managed to laugh. She passed in January, and I miss her every day.