It’s always interesting to me how many people think that small-fiber neuropathy is only the extremities because that’s the only kind that they’re aware of. Ugh.
Go talk to the pharmacist that compounded it. He may have a solution for that. One of the ingredients might be the culprit. And he can possibly mix a smaller amount of a new prescription for you to try. There are a variety of “ recipes” for pain cream. The pharmacist will want to help you find a solution!
It’s always interesting to me how many people think that small-fiber neuropathy is only the extremities because that’s the only kind that they’re aware of. Ugh.
Go talk to the pharmacist that compounded it. He may have a solution for that. One of the ingredients might be the culprit. And he can possibly mix a smaller amount of a new prescription for you to try. There are a variety of “ recipes” for pain cream. The pharmacist will want to help you find a solution!
spoke with the pharmacy that compounded the cream and they knew exactly which of the 5 ingredients was prob the culprit.
They will reach out to my doc and see about ordering another cream for me, and sending it at no cost to me.
spoke with the pharmacy that compounded the cream and they knew exactly which of the 5 ingredients was prob the culprit.
They will reach out to my doc and see about ordering another cream for me, and sending it at no cost to me.
Oh gosh! I love it when a suggestion is helpful! I’m a retired nurse, and I tend to think the way I did while working - how can we fix this problem, and help the patient. So glad you found a quick solution.
@johnbishop
Thank you for the IVig information. I am benefitting from my IVig with regards to my neuropathy even though that is not the reason I receive the infusion. Who knew I would look forward to having an infusion. Five years ago I would have been on the floor passed out (not from laughing) if someone explained the process (needles etc...).
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Yes and I agree it can be all over the more I am learning about this I understand that!
Go talk to the pharmacist that compounded it. He may have a solution for that. One of the ingredients might be the culprit. And he can possibly mix a smaller amount of a new prescription for you to try. There are a variety of “ recipes” for pain cream. The pharmacist will want to help you find a solution!
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1 ReactionYes, mine is idiopathic length-dependent small fiber polyneuropathy. It’s definitely everywhere!
Has any one been told to try
IVIG treatment to treat Sfn ?
spoke with the pharmacy that compounded the cream and they knew exactly which of the 5 ingredients was prob the culprit.
They will reach out to my doc and see about ordering another cream for me, and sending it at no cost to me.
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4 ReactionsI would love to know the answer to this as well
ANYONE ?..
IVIG helping SFN ???
@roslyn2314, There are a few other discussions that you might find helpful where members have posted about IVIG infusions for neuropathy.
--- IVIg Infusions for yet to be specially diagnosed autoimmune neuropathy: https://connect.mayoclinic.org/discussion/ivig-infusions-for-yet-to-be-specially-diagnosed-autoimmune-neuropathy/
--- IVIG Infusions: https://connect.mayoclinic.org/discussion/ivig-infusions/
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1 ReactionOh gosh! I love it when a suggestion is helpful! I’m a retired nurse, and I tend to think the way I did while working - how can we fix this problem, and help the patient. So glad you found a quick solution.
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2 Reactions@johnbishop
Thank you for the IVig information. I am benefitting from my IVig with regards to my neuropathy even though that is not the reason I receive the infusion. Who knew I would look forward to having an infusion. Five years ago I would have been on the floor passed out (not from laughing) if someone explained the process (needles etc...).
JFN
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2 ReactionsMine as well. All over my body pretty much up to the top of my shoulders and trunk. As well as legs and arms feet and hands.