DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's

I also have this disease for the last three years. For me I exercise/PT, OTC and a RX/Oxycotin for pain management and walk daily. I also apply cold packs to my back 2-3 times a day and try to keep a positive state of mind. At 74 years old I try to still do all of my chores and rest as needed for pain management. Having a Doctor who understands this Disease DISH and allow me a RX for pain management has been my greatest task.

I recently was told I have DISH. When I lie down or sit my back and legs tingle and burn and I get fatigue. I am trying to get surgery for the spurring. What meds can you recommend for the burning and tingling?

I recently was diagnosed but had it for a year. I am freaking out

I was recently diagnosed to, it’s frightening, I was told Tylenol, heat, steroid injections may help. It was dismissed by a friend saying it’s just old age, just another word the doctors through out. Wishing you the best, hang in there.

I heard that as well, that it’s just old age but that’s what most doctors were taught in med school. Some doctors are coming along and understanding that it’s not the same as just aging. There’s a reason that it doesn’t happen to everybody. In a lifetime, it’s about 25% of men and 12 to 15% of women. So if it was just old age, then everybody would get it. They believe it’s a combination of heredity and environmental factors. And those of us who have it, have it to different degrees. But we are all one group in the fact that we have it. And those of us who have it know that it’s not comfortable at all and it’s not what everybody else is going through as getting old. Most of us are in constant pain even with things that we employ to help our pain. So our job is to do what we can do to reduce our pain to a tolerable level. I asked all of you to determine what is best for you. My heart is with all of you , with this process of navigating this disease.❤️‍🩹

What can I do about the burning back?

I really don’t know what to say because I really have not had a lot of burning. Maybe somebody else has had experience with this more than I have can weigh in. Good luck.

First and foremost, I feel your pain and frustration. Not knowing how we got this condition or the fact that many Doctors look at me funny when I bring it up!! They don’t know much about DISH disease. Remembering back. I’m sure it all started when I was trying to pick up a Load of firewood and lost my balance and rammed my head into the garage siding. Came to not sure how much longer. But my point is. It helps knowing what caused it first. The docs all asked did you play sports, car accidents or falls? Yes to all. Went to many Doctors, Tylenol and physical therapy. Out the door. Lol So finally a sports medicine doctor diagnosed me with A.S. And put me on Gabapentin and a local shot in the back. All that did was make me sit on couch and stare at the wall. So arthritis doctor said I have Dish disease not A.S. So pot me in Celebrex and Tylenol. Nothing. Then I started having trouble swallowing. Had to have surgery on my neck removed bone overgrowth of my spine pinching my esophagus. Plate in front and fused two vertebrae’s in neck. Since then been on Tramadol, Tizanidine, Cymbalta (worked the best for pain but didn’t like side effects) tried Diclofenac/Voltaren (allergic to those) Meloxicam and Aleve worked but tore up my stomach!!!! Lastest is Pregabalin. Ok but side side effects and weight gain. I’m going back to drawing board. I feel movement and finding what medication works with no side effects. You have to be diligent, Doctors just say try this!! I know it’s hard, feel like you want to give up but don’t!! Find the positives in your life to keep you going. Mine is to walk my daughter down the isle her wedding day and my grandkids and my wife, gets grumpy at times with me but she admits she doesn’t know how much pain I’m in. I told her I wouldn’t blame her if she left me, holding her back, but she won’t. Wonderful lady!!! Go thru a lot emotions each and everyday, feel ok, hurt bad, lay in bed, cry in the shower, done it all. Sorry I was long winded but maybe I needed to vent, feels better. Thank you. All of you in my thoughts and prayers!!

I can’t describe my pain as burning. Maybe ice will help just a idea.

I was diagnosed about 2 years ago and am now looking into what I am about to do