still having seizures and MRI is normal

Posted by maureendigi @maureendigi, Sep 19, 2023

I need advice, My brother has been having seizures since we were a year old and our whole lives we have been told that it is just epilepsy he’s even been told that it is just anxiety. over the years he has had a bunch of different cocktails of medications, and neurologists he is currently seeing an epileptologist who has recommended that he goes to the mayo clinic because he has had seizures more frequent in the last few months and it has been impacting his quality of life and he is super frustrated and wants answers we went to the clinic and they did an MRI which came back completely normal and they want to do a PET scan in November has anyone found any other causes for seizures other than the brain or is there anything else we should be looking out for it would be appreciated

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@santosha

@tonydez1967 Hi
What does TIA stand for?
Thank you!
Chris/Santosha

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One other thing about a TIA, it may not show up on an MRI because it doesn't cause permanent damage according to my neurologist. He does tele-visits if that helps @ 727-528-2272

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@santohsa
Transient Ischemic Attack.
Some people who have TIAs suffer strokes at a later time.
I sometimes wonder if a stroke caused my epilepsy. Some doctors believe the dark spot on my brain is evidence of a stroke when I was young.
One more curiosity that I’ll never know the answer to.
Hope all's well with you,
Jake

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Good Morning Jake @jakedduck1
Good Morning @tonyde

Thank you so much for your explanations.
Wishing you all a nice day!

Chris (Santosha)

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@jakedduck1

@santohsa
Transient Ischemic Attack.
Some people who have TIAs suffer strokes at a later time.
I sometimes wonder if a stroke caused my epilepsy. Some doctors believe the dark spot on my brain is evidence of a stroke when I was young.
One more curiosity that I’ll never know the answer to.
Hope all's well with you,
Jake

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Hi Jake @jakedduck1
I am not a doctor, but I do believe that strokes can lead to epilepsy. I have recently met online a person whose epilepsy got much worse through cardiac arrest. Here is her story:
https://laurencanaday.substack.com/account?utm_source=substack&utm_medium=email
I am OK thank you. Hope you too,
Take care!
Chris

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