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Please is there anyone diagnosed with chronic granulomatous disease?

Blood Cancers & Disorders | Last Active: Nov 25, 2023 | Replies (11)
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@loribmt

I’m so sorry to hear you’re in so much agony with this disease. I don’t know if you’ve seen this website or not but they have programs to help patients with CGD

https://rarediseases.org/rare-diseases/chronic-granulomatous-disease/

Other informational sites which might allow you to find some help.

https://cgdsociety.org/wp-content/uploads/2019/05/CGDS-Medical-Guide.pdfhttps://www.medicalnewstoday.com/articles/chronic-granulomatous-disease#definition

Are you on any type of treatment and seeing a specialist? Has there been any genetic testing done to see which mutated gene you have?

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Replies to "I’m so sorry to hear you’re in so much agony with this disease. I don’t know..."
samuedion | @samuedion2665 | Sep 25, 2023

None has been done... I'm seeing a specialist but no solution has been provided

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