1. < Breast Cancer

Newbie & scared

Posted by simone1 @simone1, Jul 25, 2023

Hello,

I just found out I have breast cancer ( stage 1) first I was in shock,
next came depression and crying. I'm just scared and need someone to talk to in this group, thank you

Interested in more discussions like this? Go to the Breast Cancer Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 24, 2023
In reply to @grandmabecky "Hi...brand new to the club no one wants to join - just received my diagnosis on..." + (show)
@grandmabecky

Hi...brand new to the club no one wants to join - just received my diagnosis on Friday of last week and spent the weekend in shock and tears, of course. Waiting to hear from the surgeon about what she feels the best plan of action will be in my case.

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@grandmabecky, I thought I'd check in. Did you get more information about your diagnosis and treatment plan? How are you doing?

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Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 27, 2023
In reply to @jmc7003211953 "I am a newbie x 2 weeks. It is invasive lobular carcinoma. My surgery for a..." + (show)
@jmc7003211953

I am a newbie x 2 weeks. It is invasive lobular carcinoma. My surgery for a lumpectomy with a larger margin is in 5 days. I am a RN who worked as an outpatient and my latest employment was a nurse in a inhouse hospice facility so I have seen and know more than I want so yes, I am not so scared of the diagnosis but it is the "Invasive" portion that I am scared about. I have read up on my diagnosis which probably is not be a good thing to do but I did it anyway. My surgeon oncologist said I will need radiation of unknown length of time and a anti-estrogen receptive oral therapy and I read for 5 to 10 years duration. How prone is metastasis disease with this oral medication route? Does anyone know the answer to my question.
I don't need an exact answer but I would like to see if one could tell me what they think.

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Hi @jmc7003211953, I think you question about the likelihood of recurrence with or without anti-estrogen receptive oral therapy is a reasonable question. As an RN, you know that the answers are never complete guarantees. There are so many variables.

I think these 2 resources may be helpful for you:
- About Oncotype DX https://breastcancernow.org/about-breast-cancer/diagnosis/oncotype-dx/
- Is There a Role for Oncotype Dx Testing in Invasive Lobular Carcinoma? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4995885/

Has Oncotype been discussed with you? Is it appropriate for your decision making? How are you doing?

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