Diet & PMR.

So happy to see a discussion about clean eating and PMR! I would say it is a definite must (it is for me, including no red meat), but definitely a try for everyone. We know what is not healthy for us, that should be easy not to consume on a regular basis (moderation), but what you eat and do now, when you are older, you will have wished you were better when you were young! Inflammation has so many consequences, you and your health will suffer-guaranteed!

There are lots of options in the grocery store now I eat a lot of Simple Mill products, not like homemade but made with nut and seed flour. Organic frozen cherries from BJ Or Costco. ( big bag) I eat a cup full with a dollop of organic whip cream for dessert !! Heavenly !! And really good for you cherries !! Big anti inflammatory fruit !!

My understanding and experience is that Tylenol does not impact PMR. Advll does. Not yours?

I am a very active 60 year old semi retired health care worker . My PMR came in suddenly and severely
Affecting both hips and shoulder areas. I was travelling at the time and figured I picked up a virus . I struggled for the first month with walking , and returned to home with many questions and concerns . It’s difficult in a broken health care system to get answers on this disease and I must say reading your posts have helped me so much . There is so many common findings here . I believe I had a perfect storm
For PMR … autoimmune ( Graves’ disease) stress and I had the bivalent injection and flu shot just ten days prior to my flare up . There is a pattern here but there is a big stigma in health care relating the vaccine to PMR . I’m not an antivacer , but it is a coincidence. And one I just avoid talking about to most professionals . Fast forward the two following months I travelled again to help my sister with her cancer only to receive her helping me with my clothes and pony tails and passing a coffee cup at times I can’t even drive I’m so stiff in the mornings .
Being a boxer and runner( not lately or anytime soon ) I can honestly say this is such a humbling, bizzare. And real disease . But I have had some amazing results with my naturopath , GP and internist . 1) I do not want to take prednisone . Just reading from this site it scares me .
2) diet IS everything … Mediterranean all the way and then some ..
3) hot tub, LIGHT exercise , TYLENOL to the max , hey I even used horse lineament on my shoulders , lots of water and a small tens machine .
The naturopath gave me some supplements ( I was never into that ) but hey they are working believe me .
Not Putting down prednisone I will use it if I have to . But now at 5 months in with a lot of knowledge and support even from
All you guys . I’m doing this . Diet is key . Good luck and Ill keep reading all your posts because it helps too .

News to me. Allergic to nsaids & all I could take was Tylenol, which mildly helps.

echogirl2019, Has no one told you that prednisone is the only reliable way to control PMR? Has no one told you that without prednisone, you run the very real risk of PMR's big, ugly sister, GCA blinding you permanently? I have had both (yes, both) conditions for almost 4 years and have been active on a British PMR/GCA forum most of that time (healthunlocked.com/pmrgcauk). That forum has over 18,000 members and dozens of members who, in ignorance or defiance of the facts, are now blind in one or both eyes. Please don't risk it, I'm not.

I suspect big pharma of some ugly things too, but please don't be the one who "cuts off his nose to spite his face".

Dietary question. As I understand it, while taking Prednisone the body holds on to sodium and excretes potassium. I have been told to cut down on sodium so have substituted a no-salt replacement that is mainly potassium. Is this a good idea or should I not avoid salt?