Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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lauratys | @lauratys | Sep 18, 2023

In reply to @ann707 "Did you follow up with another bisphosphonate after Evenity?" + (show)

Yes, Fosomax . I considered Reclast but after experience with Evenity I didn't want something in my body that lasted a long time. Fosomax has been around forever so took the long term proven route.

rhubymama | @rhubymama | Sep 18, 2023

In reply to @laverne23 "I can’t take calcium pills (causes extreme constipation which then affects my digestive system), so my..." + (show)

Tums active ingredient is calcium carbonate. According to the Mayo Clinic website, this is generally the most constipating form of calcium supplements.

https://www.mayoclinic.org/healthy-lifestyle/nutrition-and-healthy-eating/in-depth/calcium-supplements/art-20047097

My husband takes calcium citrate because he takes Pepcid. He also takes extra magnesium (with his cardiologist approval) because the extra calcium was causing constipation and as well as leg cramps (in my opinion).

karenw9 | @karenw9 | Sep 18, 2023

I took Evenity and it did help my bone density. I never had any adverse reaction, and I received it monthly at my doctor's office. Just finished it in October, 2022. Now I'm on Tymlos, and not so sure I like it.

ann707 | @ann707 | Sep 18, 2023

In reply to @lauratys "Yes, Fosomax . I considered Reclast but after experience with Evenity I didn't want something in..." + (show)

Did you have joint pain with fosamax?

lauratys | @lauratys | Sep 19, 2023

In reply to @ann707 "Did you have joint pain with fosamax?" + (show)

Unfortunately yes and it started just about a week ago. I seem to be able to take Fosomax for 6-8 weeks then get pretty significant hip joint pain. I had that with Evenity at month 7 or 8. I don’t think my body likes antiresorptive drugs. I may try switching to daily Fosomax but waiting a couple of weeks to see if pain decreases throughout the week with 70 mg dosing. It’s just a challenge to feel like I have arthritis when I had zero aches/pains prior to Evenity and Fosomax .

gravity3 | @gravity3 | Sep 19, 2023

In reply to @karenw9 "I took Evenity and it did help my bone density. I never had any adverse reaction,..." + (show)

Not sure if you are on Medicare. If so did Medicare pay? Thanks

karenw9 | @karenw9 | Sep 19, 2023

I am on Medi-Cal and Medicare. And my Medicare Part D insurance paid after correspondence with my doctor's office.

arlene7 | @arlene7 | Sep 19, 2023

Follow up on request for information after my current bone density test and visit with my Endocrinologist.
Quick recap: Began with Evenity June, 2020; my bone density test in August, 2021 showed good improvements in both spine and hips. Doctor was very pleased. Followed up with Reclast in 2021 and 2022, still maintained good scores. However my bone density test in August, 2023 showed slight decrease in my hip areas, and very slight decrease in my spine. Of course I was disappointed, as was my doctor. I took a blood test and a 24 urine test to see if there was a problem with losing calcium through my urine. My urine test results were normal. Doctor did mention that Evenity only works for the first 6-12 months. Says everyone adjusts differently to the outcome of taking Evenity. Doctor has recommended another Reclast infusion and then we will discuss treatment options next year. Additionally, I have begun strength exercise classes, which I had never done. He only recommends calcium through foods and not through supplements.

rola | @rola | Sep 19, 2023

In reply to @arlene7 "Follow up on request for information after my current bone density test and visit with my..." + (show)

@arlene7 Thank you for sharing your journey. Sounds very positive cept for the last yr of reclast. Hopefully, you can maintain your gains by adding the strenght training classes you stated 🥰. I guess the Dr had a reason for not trying a different bisphosphonate? Just curious... in case I run into this in the future.