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Retinal Vein Occlusion

Eye Conditions | Last Active: Oct 20, 2024 | Replies (29)

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@rosemarya

@mopi, I have been on-the-road and am happy that I opted to opted to open your message tonight!
I was diagnosed with a BRVO quite a few years ago. I did not have any underlying conditions before my BRVO diagnosis. It came on suddenly one night as I saw sparkling lights during the night with my eyes closed. In the morning I called PCP, who sent me to opthamologist, who got me in to see retina specialist next day. I was amazed at the tests and scans that were performed to make the diagnosis and prescribe treatment. I had injections at regular intervals for (I'm guessing) 4-5 years. My scans along with the specialist's visual exam of my eye and retina, eventually showed that my leaking vein had stopped leaking and I was temporarily taken off injection and checked routinely until my doctor team said that I didn't need the injections anymore - unless the leakage began again. He released me to my opthamologist, who keeps a close watch for any reoccurrence. I have not needed an injection for @ 4 years. My eye doctor says I'm fortunate that I did not loose all of vision in my left eye. I don't know how common or rare it is to get off the injections.

I found the injections to be uncomfortable, but not painful. The retina doctors who treated me were amazing. I learned that it was best for me to get the shot early in the morning, and to spend the rest of the day doing nothing, except lying down with a cool wash cloth in a darkened room. My eyes were dilated, so I couldn't see anyway. I always took a tylenol before the office visit, and again in the afternoon. My biggest 'problem' was the floaters and the dark specks that floated across my field of vision for a few days. My girlfriend, also getting injections, used to laugh about swatting imaginary bugs when we had those black specks.
I have partial vision in the left eye. It is like looking thru a blurry grey cheerio. My right eye compensates.

Let me know if I can try to answer any questions. Let me know what your husband finds out in December 🤍

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Replies to "@mopi, I have been on-the-road and am happy that I opted to opted to open your..."

Rosemary,

Thank you so much for the reply!

At the last visit, my husband still had small amount of residual blood in the retina, but MUCH less than 10 wks ago. Since he is improving so quickly, I am hopeful that eventually he will be able to stop the injections.

I will keep you posted!

How often do you see your ophthalmologist?