Chemotherapy-induced neuropathy: What helps get rid of it?

I finished chemo last May and the neuropathy my mouth has resolved, but I still have it in my fingers and feet. The doctors I talk to say there is no cure. It should resolve on its own but can take a long time. Nerves grow back very slowly.

I was diagnosed in 2019 with peripheral neuropathy and in 2023 it is now polyneuropathy demyelinating and so far no one has referred me to a doctor for treatment and the pain is just been getting worse since 2019 and I tried all kinds of things to fix myself since the neurologist only prescribed cream which did nothing. I'm very upset that I can't get help and have to live with this pain especially at night.

I’m so sorry to hear about your condition. It sounds unbearable. My PN is just my feet and finger tips. It’s not painful but makes me crazy with the pins and needles. Every Dr I have asked has told me they don’t know how to fix it. Until they do, I’ll focus on the good things in my life.

I’m only two treatments out of 6 scheduled in, and the pain is off the charts. It’s interrupting my sleep, no its stopping sleep!! Walking has always been a vice, my drug of choice, so now there’s some depression sneaking in without the walks as well! Not sure what all I’m investing in here for a future today. Great full for input here, not always taking the best notes though.

Prescribed Pregabalin, Duloxetine, Nortriptyline, Naloxone, Gabapentin, and Buprenorphine for neuropathy, none of which helped at all. Very bad adverse reaction to Naloxone, the horrible “side” (think “direct”) effects of which I struggle to describe. I was on my knees praying to God that it would wear off. A few days ago was prescribed Buprenorphine which, to my great shock and dismay, was, conservatively, three times as bad as Naloxone and forced me to go to the ER, where they did nothing helpful, however they did succeed in performing a useless chest x-ray, CT scan, and blood test, all clear as I knew they would be. An overnight hospital stay, then back home with the recommendation from my GP that I contact the Mayo Clinic where I might benefit from a team of experts looking at my case. Not sure why my medical team here is not a "team"? Communication breakdowns everywhere.

Please talk to your doctor about this and if that doctor doesn’t take you seriously talk to your primary care doctor or ask for a referral to a neurologist. This is a serious thing and as you are losing your “drug of choice” it is maybe more serious for you.
If you aren’t getting the rest you need during chemo, that is not really helpful either.
May I ask what you are taking chemo for and what drugs you are receiving?

Ovarian 3b, no lymph nodes, tiny spot on peridium? …. I forgot, and sigmoid. Taxol, and carboplatin, blood count dropped first time, so Neulasta after treatment.
Thanx for your input, think I was resting too much, just not quality sleeping. Went for a walk this a.m. ready to rest. Does anyone feel like doing this was a mistake? Lol

I had 6 cycles of carbo and taxol and developed neuropathy in both feet around fifth cycle. Still dealing with it 5 months later. Am trying acupuncture which seems to be helping