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Treatment for chronic Epstein-Barr virus (EBV)

Infectious Diseases | Last Active: 3 days ago | Replies (634)

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@ring1954

Have you had a CT scan done? I went through something similar and through a CT scan they discovered enlarged lymph nodes throughout my body. Had bone marrow and lymph node biopsies and tons of different blood work. Never remember having mono but somehow the EBV virus was reactivated and affected my liver and spleen. Lost a lot of weight suddenly and had two bouts of jaundice. Hope you get this resolved. It took many hematologists to figure my case.

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Replies to "Have you had a CT scan done? I went through something similar and through a CT..."

I passed out and hit my head about a year ago. I spent two days in the hospital. They ran bloodwork and did a CT Scan. I was told everything was normal. When I went home and continued to get worse that’s when I saw a Function Medicine specialist. They ran the tests for EBV which came back positive with very high numbers.
I haven’t been able to get this virus into remission and I just continue down this road of exhaustion. I also still had a couple of markers for Lyme in my blood which I was told don’t really mean anything since there were only two. I’ve pretty much given up and just try to understand my new normal and do the best I can.
I was told early on I was depressed and offered antidepressants. I felt my depression was stemming from my life falling apart from being sick. I also had severe anxiety, and again it felt related to the illness. Now that I’ve accepted my new normal, I still feel sadness, but it’s not the same as depression and anxiety. It’s one day at a time and acceptance has been a slow process, but it helps deal with the pain of what my life has become. Some days are better than others.

Hi, I was diagnosed with EBV in 2022. I got jaundice in June. I went to the hospital twice. Did multiple mri, cts and a liver biopsy. Hospital dr said it was supplement induced but he brushed me off when I told him I had a functional dr giving me supplements for EBV. Today I went to a different liver dr and said I had jaundice from EBV.
Nobody has been able to tell me why and I’m so afraid of getting this again bc I was near death (92 lbs) in hospital. Still recovering but my EBV numbers are really high. What did you do to help with liver damage??? Why does EBV cause this? I can’t find a hematologist in okc. Any advice please!