Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@waltermc

Is there a website for this facility or treatment?

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@waltermc here is a Sharing Mayo Clinic story on the treatment

Breaking Away From Pain With the Help of ‘The Scrambler’
-- https://sharing.mayoclinic.org/2015/02/19/breaking-away-from-the-pain-with-the-help-of-the-scrambler/

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@da20pilot

Hi
I have found the natural opioids work better for me such as morphine. Not sure why others are not recommending fentanyl though. Hope it helps

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@da20pilot

I've been taking morphine sulfate contin orally for sfn pain for more than 5 years. It helps take the edge off the pain.

Jim

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@terrydclaar

What opioids do you find helpful for foot PN and do you use them orally or topically?

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I took Morphine for a year. I tried both the tablets and the liquid. They just switched me to Methadone Hydrochloride tablets. The Methadone works better and it lasts a long time.

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@fredjan2016

I took Morphine for a year. I tried both the tablets and the liquid. They just switched me to Methadone Hydrochloride tablets. The Methadone works better and it lasts a long time.

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Hello. May I jump in and ask if anyone using opiods for pain...is complexed over whether or not it helps pain or, as Drs say, creates more pain? I've been using Norco (hydrocdone) 5mg 2 years for full body burning, cramping, numbness, aching and sharp pains. Thanks for weighing in.
Rachel

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The only pain med that helps me is Tramadol with my pain and gabapentin does stop the burning at night time so I can sleep

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@rwinney I'm allergic to Norco only thing helps me i

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@rwinney

Hello. May I jump in and ask if anyone using opiods for pain...is complexed over whether or not it helps pain or, as Drs say, creates more pain? I've been using Norco (hydrocdone) 5mg 2 years for full body burning, cramping, numbness, aching and sharp pains. Thanks for weighing in.
Rachel

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My opioid pain medication removes the pain so I can sleep or sit. If I try walking around I will feel pain in my feet. If I keep walking the pain eventually will be more than the pain medication handle. I started out using no pain medication. When I could not longer sleep I took Hydrocodone. The pain got worse and I had to take more pain medication. So, did the pain increase on its own, did my body get used to the pain medication and I needed more or did the opioids make my pain worse? (rhetorical question) My neurologist said at the very beginning that my neuropathy would only get worse over time. Either way I have needed stronger pain medication over the last 4 years.

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@fredjan2016

My opioid pain medication removes the pain so I can sleep or sit. If I try walking around I will feel pain in my feet. If I keep walking the pain eventually will be more than the pain medication handle. I started out using no pain medication. When I could not longer sleep I took Hydrocodone. The pain got worse and I had to take more pain medication. So, did the pain increase on its own, did my body get used to the pain medication and I needed more or did the opioids make my pain worse? (rhetorical question) My neurologist said at the very beginning that my neuropathy would only get worse over time. Either way I have needed stronger pain medication over the last 4 years.

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Thank you @fredjan2016 for sharing your observation of hydro. Its a confusing mess and for me, psychological warfare. I shouldn't put myself through it but, always trying to do what's right. Drs and even Mayo preach to get off opiods and find holistic ways of helping. Well, in my opinion, holistic takes me just so far. Maybe it's time to explore new pain relief options as hydrocodone gives me 1-2 hours of take the edge off relief and I fight through til the next dose is allowed. Idk...maybe this is normal for most meds.
Rachel

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@fredjan2016

I took Morphine for a year. I tried both the tablets and the liquid. They just switched me to Methadone Hydrochloride tablets. The Methadone works better and it lasts a long time.

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Thanks for the info fredjan2016. What types of foot PN pains does the methadone hydrochloride help with?

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My neurologist and pain specialist both said that Neuropathy gets worse and that's why we have to keep increasing the meds. The nervous system is dying, starting at the tip ends of the nerves (in the feet) and working it's way up, eventually to the main trunk lines. Neither meds or anything else can make it die faster or slower. Ah well, we all die of something some day, cancer is worse, copd is much worse, stroke is worse, and thank our lucky stars that we don't have leprosy ... Peggy

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