Anyone here dealing with peripheral neuropathy?

Posted by rabbit10 @rabbit10, Apr 9, 2016

Anyone here dealing with peripheral neuropathy?

Interested in more discussions like this? Go to the Neuropathy Support Group.

@margaretob

YES I ...got gabapentin 300 mgs one am. one p.m. and one at NIGHT...got METANX is new and untried by many, flushes out the veins with
b vitamins that most people reject. Only two weeks so far, less pain, some at waking...like I said only two weeks, Nuerologist says it takes a few
more weeks to see if anything works permanently. Had an MRI of the spine, ex rays of the hips, etc. so far only this helps...

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am not in PA only in Hoboken....wish I was closer and had more info...Margaretob

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@rabbit10

John thanks for your reply. The cause is unknown in my case. But I have constant tingling on legs and arms. Of course it is worse at night when trying to sleep. Sometimes I get a strong pain in my right leg near the knee and one in my thigh. I use a tens machine for the pain but the tingling and numbness doesn't stop. I also have restless legs and take requip for that along with tramadol. It helps with the rls but no the tingling and numbness.<br />
<br />

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@rabbit10 .. try gabapentin. Get some help. No meds is not good.

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Yes hands and feet and now some calves, got Gabapentin 300 mgs. one in the am one in the pm helps, am trying the new metanx supposed to help with the circulation, so far it has been two weeks, it helps some. A.M. when I first wake up still have the pain. Not so much in the daytime. Tylenol, Advil, Aleve and Aspirin when it hits, I take one or two of these. It helps, creepy feet then the pain. You also?

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@cwallen9

I have been dealing with chronic neck and back pain, and severe, painful neuropathy in my feet, legs, hands, and arms. I live in central PA and have been trying to find a good, caring, comprehensive pain management doctor/group, with no success. Can anyone recommend a good pain management group in Pennsylvania? I am willing to drive to any place in the state to get relief.

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@cwallen9 If you want to consider Myofascial Release which can treat a lot of body pain and get he body moving correctly by removing restrictions, you may want to try the John Barnes Clinic in Pennsylvania. This is similar to massage, except the therapist will hold the stretch and wait for the tissue to release. I do a lot of MFR work for thoracic outlet syndrome and as rehab form spine surgery and it has helped me a lot. Here is the link and also the link to our discussion about MFR. There are other listings in PA too, but this is the practice of the man who created this therapy and teaches this to physical therapists. You can find the other listings on the MFR website at http://mfrtherapists.com/
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
https://www.mfrtherapists.com/app/listings/therapist/?ID=239

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@aliskahan

Hi @rabbit10 and welcome to Connect! I want to connect you with @martid, and @grandma41 who have both recently written about peripheral neuropathy. They both had different causes of their diagnosis and can discuss their experiences with you.

How long have you been dealing with peripheral neuropathy?

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October 11 the pain started in the feet and left leg, I took every over the counter meds I could find. Ran through most, pain and numbness started in November and December. January went to ER..they said ARTHRITIS and x rayed my hips. Put me on TRAMADOL, I had a very bad reaction so I saw a NEUROLOGIST who after another ER pain episode.gave me GABAPENTIN and the new super vitamin METANX. I have insulin dependent diabetes now since 1995 and are 75 years old. Pain is waking me up @ night in the left leg and feet and hands are numb. Have an appointment March 10 to see the NEUROLOGIST again. Until then GABAPENTIN 300 mgs. two times a day and one at night. AND METANX which I am told takes weeks to work to help..

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@margaretob

October 11 the pain started in the feet and left leg, I took every over the counter meds I could find. Ran through most, pain and numbness started in November and December. January went to ER..they said ARTHRITIS and x rayed my hips. Put me on TRAMADOL, I had a very bad reaction so I saw a NEUROLOGIST who after another ER pain episode.gave me GABAPENTIN and the new super vitamin METANX. I have insulin dependent diabetes now since 1995 and are 75 years old. Pain is waking me up @ night in the left leg and feet and hands are numb. Have an appointment March 10 to see the NEUROLOGIST again. Until then GABAPENTIN 300 mgs. two times a day and one at night. AND METANX which I am told takes weeks to work to help..

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THIS PAIN down the leg and into the feet is RIDICULOUS....numb hands and I shake them to get the circulation back. So far this is SERIOUS...anybody find anything that helps? I will listen...Margaretob

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@margaretob

THIS PAIN down the leg and into the feet is RIDICULOUS....numb hands and I shake them to get the circulation back. So far this is SERIOUS...anybody find anything that helps? I will listen...Margaretob

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Margaret, have you had an EMG by a neurologist? That will yield some clear diagnostic information about the source of your pain. Don’t just settle for prescriptions. Insist on a diagnosis.
Sandy

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@sparshall

Margaret, have you had an EMG by a neurologist? That will yield some clear diagnostic information about the source of your pain. Don’t just settle for prescriptions. Insist on a diagnosis.
Sandy

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Yes, also had hip x rays for the ARTHRITIS, and an MRI of the SPINE, I will see results on the tenth of March when I see the NEUROLOGIST.....Until then I take the GABAPENTIN 300 mgs. twice a day and ONE at night, it works to cut the pain down to minimum for five hours, then it revs up again....so I wait so I do not abuse the GABA and the METANX which takes months to work and is proven to cut the pain down and do some healing of the VEINS.....it is experimental and works on RABBITS and RATS...look it up...I take both..One METANX at night and the other GABAS....so far the worst of it calms down...for five hours at a time..M.

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@margaretob

Yes, also had hip x rays for the ARTHRITIS, and an MRI of the SPINE, I will see results on the tenth of March when I see the NEUROLOGIST.....Until then I take the GABAPENTIN 300 mgs. twice a day and ONE at night, it works to cut the pain down to minimum for five hours, then it revs up again....so I wait so I do not abuse the GABA and the METANX which takes months to work and is proven to cut the pain down and do some healing of the VEINS.....it is experimental and works on RABBITS and RATS...look it up...I take both..One METANX at night and the other GABAS....so far the worst of it calms down...for five hours at a time..M.

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One woman started abusing the GABAS and started hallucinating @ 1800 mgs. I have NINE spaced over a twenty four hour period.
I have no hallucinations and do REMEMBER MY NAME which she said happens with forgetfulness at 1800 mgs....Margaretob

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DIagnosed with INSULIN dependent DIABETES in 1995, am 75 and a half now. I get good stick your finger numbers daily with the INSULIN...the NEUROPATHY started OCTOBER 11th when I got serious pain in my legs and feet....Since then two ERS and the NEUROPATHY DOCTOR...so far so good...will see what he says on the 10th of THIS MONTH OF MARCH....

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