Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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@teb

There is much controversy over dairy but the calcium content is not in dispute. Really just depends upon whether you have the appropriate enzymes to digest it (lactase to digest the lactose) or whether there are allergies (more likely to the casein content) or autoimmune issues which might contraindicate consuming.

One of the more absorbable forms of calcium from supplements is the citrate form which can be taken on an empty stomach.

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Thank you for sharing. With reference to the absorption of calcium, I have read that we can only absorb 500 mg at any given time, so I am looking for that size in the vitamins department at Kinney's or any drug store.

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@lashu

I am responding here to both of your posts. My first shot of Evenity will be today at 2:30 pm. I will ask the nurse about the location on my body for the shots: I think they said the shoulders and it takes a half hour: maybe they mean I have to rest afterward. Both of your comments are really helpful Laverne. Just talking with someone who has the experience is reassuring. So many factors at play in our situation! I am hoping for the very best results for us.

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Let me know how your appointment goes.

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@neesie0159

I’m hoping I can make it through the year of Evenity, second shots are today. I had a horribly sore arm the day of and day after the first shots, as well as a few nights where I barely slept. If it doesn’t get worse than that and I can improve my -4.3 spine score, it would be worth it.

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I got my shots in the belly fat which is an option you might try.

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@lashu

Thank you for sharing. With reference to the absorption of calcium, I have read that we can only absorb 500 mg at any given time, so I am looking for that size in the vitamins department at Kinney's or any drug store.

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Good luck to you today, you will be fine. Just make sure you hydrate before/after your injections. You might feel tired today, so just rest and relax. I hope your journey with Evenity is a good one, and that you have no side effects. As far as Calcium is concerned ( just a suggestion) I would encourage you to read to book " Great Bones" by R Keith McCormick he gives excellent advice on supplements and which Calcium ( and how much) to take. You have a lot of support on this site.

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@pedsnurse61

Good luck to you today, you will be fine. Just make sure you hydrate before/after your injections. You might feel tired today, so just rest and relax. I hope your journey with Evenity is a good one, and that you have no side effects. As far as Calcium is concerned ( just a suggestion) I would encourage you to read to book " Great Bones" by R Keith McCormick he gives excellent advice on supplements and which Calcium ( and how much) to take. You have a lot of support on this site.

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Thanks for the reminder about sufficient hydration

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@lashu

Hi lab54, I am wondering how you are doing now, a month later from your August 12 posting. I am due to start tomorrow with my first Evenity infusion. I have neuropathy in my feet that gets in the way of a good night's sleep for thirty years now. And sometimes, also, too much energy to go to sleep. My concern is the neuropathy because tingling in feet is one possible side effect that is mentioned. Did the doctors tell you why you felt nauseous? I don't remember reading that as a side effect.

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I also have Neuropathy in my feet. After my first set of injections, I did notice swelling in my ankles & feet. I do take Ropinarole for the RLS & Gabapentin for the Neuropathy. Nauseous is mentioned as a side effect but not a common one. The two major side effects are jaw cancer & headaches. I also noticed my arms have been very painful as well. The most disturbing side effect is the bad rash on my face. I’m on Doxycycline & an antibiotic gel too calm down the rash. My Rheumatologist told me it wasn’t a deal breaker that my ankles & feet were swollen or a rash on my face. She wants me too continue with Evenity because she worked so hard too get it approved. Time too find a new Rheumatologist, ya think?

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Has anyone gotten once yearly injection for osteoporosis. Seems easier than taking Fosamax but I would like to know how long injection has been on the market, and success rate of those who took it. Thank you in advance.

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@lab54

I also have Neuropathy in my feet. After my first set of injections, I did notice swelling in my ankles & feet. I do take Ropinarole for the RLS & Gabapentin for the Neuropathy. Nauseous is mentioned as a side effect but not a common one. The two major side effects are jaw cancer & headaches. I also noticed my arms have been very painful as well. The most disturbing side effect is the bad rash on my face. I’m on Doxycycline & an antibiotic gel too calm down the rash. My Rheumatologist told me it wasn’t a deal breaker that my ankles & feet were swollen or a rash on my face. She wants me too continue with Evenity because she worked so hard too get it approved. Time too find a new Rheumatologist, ya think?

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I m not knowledgble on this subject but I agree with you re new physician.

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@lab54

I also have Neuropathy in my feet. After my first set of injections, I did notice swelling in my ankles & feet. I do take Ropinarole for the RLS & Gabapentin for the Neuropathy. Nauseous is mentioned as a side effect but not a common one. The two major side effects are jaw cancer & headaches. I also noticed my arms have been very painful as well. The most disturbing side effect is the bad rash on my face. I’m on Doxycycline & an antibiotic gel too calm down the rash. My Rheumatologist told me it wasn’t a deal breaker that my ankles & feet were swollen or a rash on my face. She wants me too continue with Evenity because she worked so hard too get it approved. Time too find a new Rheumatologist, ya think?

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Thanks for your openness about these issues, I really appreciate it. My neuropathy has been around for at least thirty years and nothing has helped much. Gabapentin alone does not help a great deal but lately, with amatriptiline, it seems to alleviate it to a considerable extent! I hope it continues in this way.
The jaw is threatened with necrosis, but cancer is something I had not seen before, though it makes sense, since necrosis is dying tissue and I've found mixed reviews on the extent to which anything will help the problem. If caught early it has been said that antibiotics work, but even that was an ify promise.
Painful joints seems to happen frequently with patients. I had not heard of a rash before, but I certainly believe you. Swollen ankles and feet are also a new symptom to me, but it makes sense insofar as cardio and stroke issues are warned when taking it and those both engage circulatory health.
I postponed the injection until October, under a caution from someone in health field. So I await further advice and information.
How serious were your T scores, or however your OP was diagnosed. Am praying for your good outcomes, somehow, in spite of these problems.

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I have been afraid of the jaw necrosis too. I floss every night to try to prevent any tooth problems. From what I understand from my dentist, it's okay to get cavities filled. Just don't have a tooth pulled while on the meds. I'm not sure if root canals are risky. Good luck!

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