Gm. Hard to say really. I have an auto immune mixed bag. Currently dx with sle, fibro Sjogrens and POTS which I am seeing occurring more in lupus/ Sjogrens warriors. I had the weakness down my right side for like a year. My balance was off. I would definitely address this issue with a neurologist and not be dismissed. Unfortunately with some of us.. another pair of eyes is needed. I was sent out to Johns Hopkins. To see a nuero rhuemy. They don’t have this where I live. I am trying to find the most resources since my only daughter also has been dx with Sjogrens.

I was initially dxed with Raynauds, but 30 years later it morphed into small fiber neuropathy. I also have significant RLS. They just all seem to meld together to annoy me! Many years ago a rheumatologist suggested I put a magnet on a clothes pin and use it to keep a pair of cotton gloves clipped to my refrigerator. Wear them when getting anything out of my freezer.

Was diagnosed with MS about a year ago. Recent biopsies on my right leg show small fiber neuropathy, and other symptoms to include xerostomia and dry eye, my neuro now tells me that I also suffer from Sjogren's. Recently began a 6 mo protocol of MetaNX, a supplement, quite expensive, and is given by prescription only where I live. It is not covered by insurance, but have been able to get it for about $200 for each 90-day supply. We will see if it helps with the neuropathy in arms and legs. MetaNX is for diabetic neuropathy but, supposedly, has helped some with small fiber neuropathy related to Sjogren's. Though some pharmacies claim that something that begins with an F is a generic for it, further research says it isn't. Some who have been using it for sometime found that when they switched to this claimed generic, symptoms worsened immediately (online). Good wishes to you on your journey. Like you, am in my mid 70's, and newly diagnosed with both the MS and Sjogren's. MS fatigue is the pits! Cognative issues when manifesting the pits. Not able to sleep at night, the pits. So much more. But, it is a travesty that they put those of us our age on a shelf, so to speak because it is believed that the more intensive treatments offered to the young may only help 30% of those are age (or so I am told). My fatigue thus far has been managed with twice a day, but is not working as will as it did a a few months ago. But since it is prescribed "off label," my insurance doesn't pay for any of it. LDN seems to the next medication that my neuro may try; it may help with pain and fatigue (will stop the Modafinil). Again considered off label, cost will come out of my pocket; insurace will not cover it. However, both this meds seemingly have helped those with MS, off label or not.

Thank you for the url. Yes, am taking the MetaNX, but just began yesterday. Hope springs eternal!

Hello @dancing1. You will notice that I have moved your post and the replies so far into an existing on SFN. You can find your post here:
- Small Fiber Neuropathy: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-11/