Anyone here dealing with peripheral neuropathy?

I hate to interrupt this discussion, but I have a question and I don't know any way to get an answer other than this way. For a week or more and intermittently before that I have been having email for this topic going to spam. Just neuropathy, no other topic. Any way to change this? Also it can take a day or two until they show up in the spam folder.

Hi @johnhans have you tried setting a filter on your email program to move the Connect emails into a separate folder and not in your inbox? There's a discussion on how to do it here:

> Groups> Just Want to Talk > [Tip] Filter your Connect emails into a folder
-- https://connect.mayoclinic.org/discussion/tip-filter-your-connect-emails-into-a-folder-1/

@johnbishop thank you for your reply. I am on an Android phone so those instructions do not apply to my situation. Also it is not that the Connect messages are hard to find in my email folder, but that they do not show up at all. They only show up in spam and then sometimes not for days after. Again thank you for your time and consideration in helping me.

@johnhans- I often have the same problem. At first I thought is was the word CBD when mentioned would kick it out a phishing, but it happens on several other topics? I've just gotten into the habit of checking spam and moving the Mayo ones into my other folder. Jim@thankful

Thank you for your reply. I have done the reporting as not spam and moving to the regular in folder, but that seems to only work for a while and then back to going into spam. Nothing else seems to work, so I guess I will just have to keep repeating the report as spam and moving to the in box.

Hi Colleen, I was diagnosed Ovarian cancer in 2016 and developed neuropathy early on during chemotherapy. Unlike most people, mine did not go away. I also have Hypothyroid, Celiacs, Osteoarthritis and Raynaud's. Because of the Raynaud’s, it was confusing at first; my symptoms weren’t completely the same as before. My feet are super numb, and they feel like I have something thick stuck to the bottom of them. On the upside, the burning and tingling from Raynaud’s is significantly reduced...which means I need to be even more careful about heat and cold. My shins and knees also hurt. My hands are now extremely sensitive, painful as heck and I lost a great deal of my dexterity and strength in them. I was a legal secretary; so, needless to say, the career came to an end. I used to be a musician, artists, seamstress, did extremely delicate embroidery work, smocking and loved gardening. I now try to find other creative outlets that require less dexterity or trauma to my hands.

Last year (2 years later) I went through radiation for breast cancer (I’m BRCA negative, go figure!) and shortly after completing treatment I thought I was having a major flare: Nope, i was diagnosed with fibromyalgia. They changed the AI I was on which helped a bit. I was already on gabapentin so they increased the dose to 2400mg. They also increased Cymbalta to 90 mg, increased the muscle relaxant and added an anti-inflammatory. They also increased the amount of Xanax I take on top of my regular meds. I think it helps the spasms in my hands.

To be honest I am not sure how much all the medication helps. I am still in a lot of pain. Movement helps more than anything. I try to keep moving by doing restorative yoga, or Qi Gong, TaiChi, walking, bicycling, swimming and lake kayaking. I also developed lymphedema which comes with its own set of issues, and does limit some of my activities. It doesn’t help that my immune system hasn’t recovered and I get everything that goes around.

I am stubborn, which I think is a good thing when you have any ONE of these diseases. If something doesn’t work one way, find a work around. Larger handled hair brushes, a stand to hold the hairdryer, gloves that help to hang on to things (I.e. my kayak paddle), shoes that slip on or have Velcro (yes it’s a bit embarrassing sometimes). My sweet husband paints my toenails for me and got me a robotic vacuum. I avoid small buttons, zipper pulls and snaps in favor of larger ones.

I have good and bad days, some days pain wins. Given my diseases, I am blessed to have more time. More time with family and friends.

I am also very blessed to live in Colorado. Four season, each with fun outside activities and the bluest skies ever. And, cbd is legal here. So, when a friend suggested I try It I thought, “why not”. After speaking with my doctor, I did a bunch of research, recruited a friend (five in fact) to go with me, and gave it a try. Finding the right product/blend is tricky but it helps. And it gives me more good days!

Wishing everyone MORE GOOD DAYS!!

#cancersucks #painsucks #moregooddays #todayibeatpain

Hi Colleen, I was diagnosed Ovarian cancer in 2016 and developed neuropathy early on during chemotherapy. Unlike most people, mine did not go away. I also have Hypothyroid, Celiacs, Osteoarthritis and Raynaud's. Because of the Raynaud’s, it was confusing at first; my symptoms weren’t completely the same as before. My feet are super numb, and they feel like I have something thick stuck to the bottom of them. On the upside, the burning and tingling from Raynaud’s is significantly reduced...which means I need to be even more careful about heat and cold. My shins and knees also hurt. My hands are now extremely sensitive, painful as heck and I lost a great deal of my dexterity and strength in them. I was a legal secretary; so, needless to say, the career came to an end. I used to be a musician, artists, seamstress, did extremely delicate embroidery work, smocking and loved gardening. I now try to find other creative outlets that require less dexterity or trauma to my hands.

Last year (2 years later) I went through radiation for breast cancer (I’m BRCA negative, go figure!) and shortly after completing treatment I thought I was having a major flare: Nope, i was diagnosed with fibromyalgia. They changed the AI I was on which helped a bit. I was already on gabapentin so they increased the dose to 2400mg. They also increased Cymbalta to 90 mg, increased the muscle relaxant and added an anti-inflammatory. They also increased the amount of Xanax I take on top of my regular meds. I think it helps the spasms in my hands.

To be honest I am not sure how much all the medication helps. I am still in a lot of pain. Movement helps more than anything. I try to keep moving by doing restorative yoga, or Qi Gong, TaiChi, walking, bicycling, swimming and lake kayaking. I also developed lymphedema which comes with its own set of issues, and does limit some of my activities. It doesn’t help that my immune system hasn’t recovered and I get everything that goes around.

I am stubborn, which I think is a good thing when you have any ONE of these diseases. If something doesn’t work one way, find a work around. Larger handled hair brushes, a stand to hold the hairdryer, gloves that help to hang on to things (I.e. my kayak paddle), shoes that slip on or have Velcro (yes it’s a bit embarrassing sometimes). My sweet husband paints my toenails for me and got me a robotic vacuum. I avoid small buttons, zipper pulls and snaps in favor of larger ones.

I have good and bad days, some days pain wins. Given my diseases, I am blessed to have more time. More time with family and friends.

I am also very blessed to live in Colorado. Four season, each with fun outside activities and the bluest skies ever. And, cbd is legal here. So, when a friend suggested I try It I thought, “why not”. After speaking with my doctor, I did a bunch of research, recruited a friend (five in fact) to go with me, and gave it a try. Finding the right product/blend is tricky but it helps. And it gives me more good days!

Wishing everyone MORE GOOD DAYS!!

#cancersucks #painsucks #moregooddays #todayibeatpain