Long Term Covid articles - MUST READS
The priceless information below is something that ALL physicians need to be reading to better understand, acknowledge and support their patients. I've been suffering for 3 yrs now, currently very ill and down to 90 lbs, 30+ horrible symptoms, can barely function and in horrific pain all over my body. I know I can't go on much longer and sadly, I can't find any doctor to help me. I love life so much, but this is so very hard.
I want to help others and if we make every effort to provide this information and link to the doctors, including Mayo, maybe we can get the help we need. For me, it's too late and too much damage in my body.
https://hms.harvard.edu/news/most-important-question-about-long-covidInterested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.
Having rapidly lost 35 lbs post covid and losing appetite and still feeling full after small eating and a raging thirst. Local Drs convinced me I had gastric cancer. No pain or acidity. I’m in tune with my body and was sure it was Covid induced as it’d caused partial collapsed lung and inflamed liver. I was also not absorbing properly with vit D at the lowest recordable. I underwent all Ca test, gastroscopy showed extreme serious inflammation of stomach.read research paper since that Covid can inflame all of gut and even cause IBS. So bear it in mind.
Excellent article. Thank you for sharing.
I've been suffering now for 3 very long and brutal years. When I read the information below, I was in tears. Due to not be treated and believed by the many numerous doctors I've seen to date and untreated, I have ALL of the symptoms listed. Prior to Covid, I was so very healthy and active and enjoyed walking, biking, hiking, working in my yard, lovin' my job and on the go constantly in my mid 60's. I can barely function now, down to 90 lbs and in extruiating pain. Last nigh my skin an nerves were on FIRE! I took Benadryl, but other than that, nothing else I could do. Pre-covid, I never had problems with my eyes, I now have blood shot eyes with occular rosacea and eyes burn daily and in terrible pain. Developed styes and chalazion which became infected and had to go through 3 surgeries all to no avail. Even as I type, my eyes are burning. I have to go to the doctor's office tomorrow to get the sutures out which will be excruciating.
My body and organs are shutting down and I have no doctor or anyone who will help me. I pray every day for my Dear Lord to hear me.
Covid is a horrible and virus and weapon. I cry daily because I just want to go back in time to pre-covid days and when I felt so wonderful and enjoyed life and all my many blessings.
Hugs
https://www.msn.com/en-us/health/medical/surprising-signs-you-ve-already-had-covid/ss-AA1gy2jh?ocid=hpmsn&cvid=1e9bd81a613a42c485c74cf6ff9021c7&ei=11#image=1
@summerof42
I began experiencing my symptoms in November '21 after my first Moderna booster and proceeded to go through every specialist in and around Charleston, SC. My Doctors called it "the journey of what it's not", and in reflection it is astounding (now that I have been to Mayo and experienced their knowledge) the lack of understanding medical professionals here have. They are trying, but they don't truly understand the problem thus the path to wellness.
In reflection my biggest learning is the practice of moderation which Mayo preaches. When I read posts I don't find anyone mentioning moderation as central to recovery and wellness. One medical professional said to me "you need to act like you had a heart attack and follow a very strict recovery plan". Another said "you need to act like you were an athlete and you were injured and follow a specific plan to return to your prior athletic performance". I, not knowing any better during the first 6 months of 2023 was exercising 6 of 7 days 45 minutes aerobic (cardio and resistance) exercise and would crash afterwards not understanding that I was driving myself backwards because of not moderating!! Today as part of my recovery plan (my plan includes many other elements thanks to Mayo direction) I am at 10 minutes of recumbent bike and am beginning to feel better.
I truly hope you find a plan that gets you to wellness. If you haven't been to the Mayo Clinic and can I highly recommend it, for me they were the only ones who understood the problem and have set me on a path to recovery and wellness again.
I don’t think I can get to Mayo. I wish I could.
I do feel totally misunderstood by the many, many doctors I have seen. Seems like by now our issues would be credible.
What they offer me is antidepressant, and I have tried several. I do not tolerate any I have been prescribed. I feel so adrift and searching the internet for some clue as to what has helped someone else. I know it is a fools errand because our symptoms are so different and particular to each case. But, I have tried lots of different things that have worked for others.
I get what you mean when you say moderation, and I believe I am not pushing myself. I rarely leave my home except for a few healthcare people I still see. I often comment to my husband that these appointments are a waste of time, but I can’t really give up. My family is very supportive or I would not have made it this far.
If I felt stable maybe I could think of myself as the recovering heart patient or recovering athlete.
My symptoms are worsening and I can’t help but panic to think where I will be in 3-6 months when I’m barely functioning now. It has taken me sixteen months to get in the shape I’m in now.
Oh this beast!! Thought I was on the way but a little crash yesterday sent me reeling! I had almost two weeks of almost normal then wham ! I am so very fortunate to have caring, knowledgeable doctors. We are now trying a tiny dose of thyroid medicine and I thought that was the trick now I’m not sure. Sooo frustrating. I know I am better because I don’t spend the day in bed anymore and many days I walk my neighbors dog for 20 mins. Moderation is the key. I operate completely differently now! I was sooo active. I have sold my kayak and am giving my bike away as I just turned 75 and will just rent something if I am ever able to do things again! Blessings to all and may everyone find competent medical care !!
I’ve been dealing with Long Covid for a year and a half and it seems like every time they give me a new drug. I have different problems. I am very so fed up with it now I’m on PREDNISONE and now I’m having cramping in my legs so bad that I am in excruciating pain can’t sleep. Just fed up with everything.
And now the doctors telling me to go to the ER to see if I have a blood clot in my leg. I am fed up. I don’t care. There is no support system out there for Long Covid even through the government.
I agree you should check (at least rule out) any blood clots in your legs, but you’d think your doctor would order those tests for you! Most doctors only know what any test results show them. In my own opinion, most doctors don’t think for themselves. I have had a couple who did, and they saved my life.
I dont know if this will help but have you tried to see a FUNCTIONAL MEDICINE Dr? Conventional med dr's will not help you. They only treat symptoms and wont try to figure out why things are the way they are. If it can't be seen on an xray, MRI or simple typical blood tests, they will not keep digging. There is a lot of info out there now about long covid being a MAST CELL issue. Find a functional medicine dr and see if they will help with certain antihistamines (not benadryl) and low dose anti inflammatory meds like Naltrexone which is used in low doses for post viral inflammation. I am only 11 weeks in to my meds (Ketotifen 1 mg every 12 hours and Naltexone 4.5 mg nightly before bed) but I know so many people that are bedridden from long covid and these meds seem to at least help me feed myself and keep house. Believe me I am NOT healthy like I was before. I was on a horse drill team with teenagers prior to getting long covid and I cannot do that now but I am at least 40% functioning. There is no way I could work if I were still nursing at the hospital though. My body is in too much pain with the muscle cramps and skin burning to be able to focus on a job. My heart pounds 50% of the day but my dr Rx'd Low dose Ativan 0.25 mg for that and it helps a little. It also helps with the tremors and the skin burning. It's not perfect by no means. There are moments where the med fails but the majority of my day is no longer filled with contemplating suicide.
Thank you...I am trying to moderately put back my life together